Patreon Drive for August 1 Donations. Thank You for Your Support. Update Below the Fold.

patreon
Please click the Patreon image in the sidebar or use the links below to visit my Patreon page. Thank you for your support. >>>>>>>>>

Thank you to my 12 existing Patrons!  I appreciate your support.

I would never ask to be rescued from a more or less natural death.  When I came here 3 years ago to treat my serious chronic illness with medical cannabis, I really felt like I was dying, that I had no choice and that even if I “lost everything” it would not matter.  My quality of life was nonexistent and I was so extremely ill that I thought either I would die from my disease (which I believe is essentially a terminal illness, or at least that it’s terminal without treatment) or that I would heal enough to go on with my life even if it looked much differently than it had before.  3 years later, I have “lost it all” having paid out-of-pocket for out-of-state lodging and treatment which has given me profound pain relief and significant healing from the ravages of my incurable and disabling autoimmune condition, Crohn’s disease.  While I consider this to be an unlikely and hard-won personal success and am so grateful that I was able to do that for myself, I am now facing something I did not expect: figuring out how to live into the foreseeable future with an only somewhat healed and temporarily managed illness and no money, no credit, no immediate eligibility for benefits and little or no ability to earn.

Continue reading “Patreon Drive for August 1 Donations. Thank You for Your Support. Update Below the Fold.”

Advertisements

Underpants Gnome Logic: Treating Crohn’s Disease with Biologics. An Illustration. (Phase 1. Destroy Your Immune System. Phase 2. ?? Phase 3. Feel Better).

The Underpants Gnomes from South Park have this critical thinking thing down.  Exactly as well as anyone taking (or giving) biologics to treat autoimmune disease, anyway.  I wish there was more rampant discussion about this literally everywhere, but if there is I haven’t seen it.  The best I have seen is this post by RA Warrior (links within) addressing Big Pharma propaganda, specifically how Big Pharma lies about every facet of autoimmune disease including how disabling autoimmune diseases are, how effective the treatments are (necessarily including a cost-benefit analysis considering the iatrogenic illnesses and injuries inherent to Big Pharma treatments including biologic treatment) and how these diseases progress.

In fact, autoimmune patients know too well that the reality of living with an incurable, untreatable and progressive disease — and autoimmune patients often live with more than one — exists in stark contrast to the messages in these propaganda campaigns: these diseases are often extremely disabling and cause systemic (not merely localized) effects; the symptoms including pain and disability are NOT treatable, where they do not respond, do not respond well, or do not respond for long to conventional treatments including biologics; and autoimmune diseases are progressive where you will be lucky to just stay the same and not get worse.  None of this is consistent with the claims that autoimmune patients can “get their lives back” with any Big Pharma treatment, let alone a treatment that destroys your immune system like so-called biologics do.

Continue reading “Underpants Gnome Logic: Treating Crohn’s Disease with Biologics. An Illustration. (Phase 1. Destroy Your Immune System. Phase 2. ?? Phase 3. Feel Better).”

Autoimmune Women Are Supposed to Pay Doctors to Give Them AIDS. Are You Fucking Kidding Me.

Remember when “they” were saying that getting AIDS was like the worst thing ever?  I do — I am a child of the 80s afterall, and I was in 4th or 5th grade when the AIDS crisis hit and everyone was terrified of getting AIDS, children (children!) were being told to never have “unprotected” sex because of the AIDS, early on we were being told not to use public drinking fountains and to ostracize children with AIDS so as not to get AIDS ourselves.  Remember Ryan White?  I do!  I didn’t even have to Google to find his name, 40 years later I still remember his name and his story by heart, he was from my state and a few years older than I was.  He scared the shit out of everyone because he wasn’t doing anything “wrong” when he contracted AIDS like having the unprotected (or gay) sex.  That poor soul got it from a medical procedure, in his case, a blood transfusion for hemophilia.  Tragic.

Soon it became passé for anyone to trouble themselves with “how” anyone contracted AIDS — AIDS patients deserved our compassion, our respect, our acceptance of their physical and mental decline and resulting disability, regardless of how they got it.  Remember Ali Gertz?  I do.  She was a straight, affluent, white female and she got HIV and developed AIDS from a single sexual encounter with a man.  Of course, the man was bisexual and almost certainly got it from another man but by then it ostensibly didn’t matter…unless a woman gave her baby AIDS, then of course the woman was the Devil.  AIDS didn’t discriminate, AIDS was a horrible, painful, untreatable disease, a death sentence that no one deserved…except mothers who gave their babies AIDS, they deserved everything they got and more.  But deserved or not, no one was disputing that AIDS was serious, painfully serious, brutally final.

At some point “they” started saying no it’s not the AIDS specifically that’s the problem, it’s the HIV you don’t want, and that’s a virus so just use Universal Precautions and you should be fine!  Fairly recently they started saying it’s possible to “live with” HIV and never develop full-blown AIDS at all.  The message there appears to be that AIDS is actually what you don’t want afterall.  AIDS — Acquired Immuno Deficiency Syndrome — where your immune system becomes weakened, decimated and destroyed and you develop life-threatening opportunistic infections from bacteria, viruses, parasites, fungi, you get cancer (or more than one) and then need to be treated for the cancer(s), your quality of life plummets to zero and you can no longer work or play effectively, your friends and family have to care for you, even though there’s nothing long-term they can do for you, and you die painfully, skeletally, covered in sores and rashes, beyond spent, half out of your mind.  That’s the effects of the AIDS mind you — the HIV in and of itself appears to be relatively harmless except that it causes AIDS, and AIDS is still bad, very very bad, something unequivocally to be avoided.  Are we clear on that?  Good.

Enter “biologics,” the class of “treatment” — read Big Pharma poison — approved for managing autoimmune diseases like Multiple Sclerosis (MS), Rheumatoid Arthritis (RA) Crohn’s disease and more.  The so-called “side effect” of biologics — read iatrogenic illness and injury, meaning additional illness and injury caused by medical attention and treatment itself — is that biologics “change how your immune system works.”  That obfuscating bit of Big Pharma propaganda brought to you by the literal pricks at Johns Hopkins Arthritis Center.  Of course, “change” here means “destroy” and going from having a functioning immune system to not having an immune system at all is certainly a change so they aren’t technically lying but WOW, just wow.

Continue reading “Autoimmune Women Are Supposed to Pay Doctors to Give Them AIDS. Are You Fucking Kidding Me.”

Cheryl Went the Other Way. On The Path Not Taken.

Recently I met Cheryl, a member of my adopted community here in the Middle of Nowhere, Cannabis Central, USA.  Cheryl is a bit older than I am, used to be a writer of religious texts.  Even had one published before self-publishing was a thing.  A bona fide published writer.  Writers are a weird bunch (obviously) and Cheryl is certainly weird, and was probably a bit (way) off even before she got sick — like me, Cheryl is seriously chronically ill.  I haven’t asked about her diagnoses but like many chronically ill people and especially chronically ill women, she likely has more than one illness, and it is likely that at least one of her afflictions is an autoimmune disease.  As I am learning, these illnesses, for whatever reason, tend to travel in packs.  I personally only have one that I know of — Crohn’s disease — but since moving residences 2 weeks ago and finding myself unable to get out of bed much and wracked with head-to-toe pain and crippling fatigue ever since, I am once again wondering if I have another one although I have learned through reading other Crohn’s patients’ testimonies online that Crohn’s all by itself is enough to render anyone the barely-walking dead and that is indeed how I feel.  Cheryl, on the other hand, has been buried under her particular prison for years.

Continue reading “Cheryl Went the Other Way. On The Path Not Taken.”