#HighRiskCOVID19. You Don’t Say. Shame v. Cause and Effect (Again)

Apparently, social media is currently alight with a new hashtag, #HighRiskCOVID19 which is being used by people with “underlying medical conditions” who are at greatest risk, besides the elderly, of contracting and becoming dangerously ill with the disease.  Some of these people, but not all, are autoimmune patients and others voluntarily taking immunity-decimating Big Pharma medications to “treat” their underlying diseases including cancer, rheumatoid arthritis, lupus, and Crohn’s disease.  The message is intended to convince “well” people to stay home in order to not risk spreading the virus throughout communities and ultimately to those who are already seriously or chronically ill.

Putting aside the fact that these drugs often don’t even work, work well, or work for long to treat the pain and symptoms of autoimmune disease, despite the lies Big Pharma propaganda spews everywhere — lies that sick people’s friends and family often believe instead of believing the testimonies and lived experience of the people they supposedly love — these so-called “biologic” and chemotherapy drugs are prescribed to autoimmune patients because they destroy the sick person’s immune system, thereby (theoretically) preventing it from attacking the sick person’s own tissues.  Of course, destroying anyone’s natural immunity also makes them more susceptible to opportunistic infections and environmental pathogens like the common cold, flu and the novel Coronavirus or COVID19.  Essentially, autoimmune patients taking immunity-decimating drugs have allowed doctors to give them AIDS and all the complications of full-blown untreated AIDS.

In contrast, actual HIV-positive people with full-blown AIDS (assuming they have access to health care) are aggressively treated with an immunity-bolstering protocol and many are able to avoid the hideous outcomes that were a death sentence for AIDS patients in the 80s including lethal fungal infections/thrush, pneumonia and cancer.  But no one is bolstering autoimmune patients’ purposely fucked-up immune systems because that would defeat the point of letting doctors give them therapeutic AIDS to treat their AI.  In fact, immunocompromised AI patients, unlike those with full-blown untreated AIDS due to HIV, are fully expected by everyone to just go back to their previous lives, including returning to full-time work, like they aren’t sick at all.  Somehow having both AI and AIDS = healthy.  Some of them may — or may not — be told to wash their hands and avoid sick people, which is impossible innit.

Many AI patients are not even given the benefit of informed consent and are not fully informed of the very real and expected consequences of destroying their natural immunity to environmental pathogens.  Patients often aren’t even told how the medications they are taking are expected to work, or if they are “informed” they are too sick and cognitively impaired to even understand what they are hearing.  In other words, they don’t know they are consenting to essentially contracting AIDS.  If they do understand it, they may be too sick to even care.*

There is also the issue, isn’t there, of congenitally nonviable infants being handed over to Big Medicine to essentially animate them well enough to be lifelong victims and consumers of patriarchal Western medicine, where many if not all of these infants are immunocompromised and/or have reduced lung capacity and lifelong serious “preexisting medical problems” due to their congenital malformations or premature births.  Before that, many Western women take prescription medications meant to prevent miscarriage, when miscarriage has historically (and prehistorically surely) prevented nonviable and congenitally malformed fetuses from being born at all.  Get it?  Good.  Enter the novel Coronavirus.

Continue reading “#HighRiskCOVID19. You Don’t Say. Shame v. Cause and Effect (Again)”

The Post In Which I Mom-Shame. Sorry Not Sorry.

This was and is the absolute last straw.  I have been writing health and medical-related content on this blog for almost 2 years now and I have deliberately avoided this topic because I knew how it would be received.  Mothers have been criticized and punished for their choices (and their femaleness) forever and now that we are all enlightened and feminist and shit, mothers and motherhood are beyond reproach.  I know because the internet said so!  Mom-shaming is right out, no one is allowed to criticize women who conceive, gestate, birth and/or raise children for anything because liberal feminism and besides, under patriarchy, women’s and mothers’ choices are artificially limited and (therefore) coerced so the fucked up things women “choose” for themselves and their children are not women’s fault.  Radical feminism supposes that the things women choose are not even choices at all.

First as a liberal feminist and later as a radical, I accepted one or the other of these rationalizations for a long time and refused to criticize women and mothers on feminist grounds, where women as oppressed people previously and/or currently lack the social and political power to be fully actualized, engaged human beings and the central agents in their own lives.  Between feminist arguments centering agency and non-agency (liberal and radical viewpoints respectively) women and mothers have secured a free pass to do and choose anything, absolutely anything, regardless of the consequences to themselves or to other people, or to animals, or to the living planet.  Rather than examining cause and effect — meaning the intended and unintended consequences of our action and inaction — somehow “shame” has become the focus and women are not to be shamed, and by shamed we apparently mean held accountable for their own actions.

For one reason and then another, cause and effect have been deemed irrelevant to women and women’s choices and women’s interactions with our world — well, with mensworld as it were.  Before feminism, women were simply expected to do what they were told and they usually did.  But cause and effect are always relevant so long as we are alive on this planet because cause and effect is consistent with natural law.  Get it?  There are laws that have existed longer than humans, longer than civilization, longer than patriarchy, and which sure as hell predate feminism, and for a long, long time we have acted as if these natural laws were unimportant, or less important than other things.  Less important than men’s laws.  More recently, less important than not-shaming women.  This has been our mindset for thousands of years by now — at least 10,000 years by my estimation, which was approximately the beginning of agriculture where humans sought to overcome or tame nature to our own ends.

We did this, we chose this, and we have been doing it and choosing it for a long time.  Where we are now could be said to be the result of 10,000 years of that unnatural/patriarchal policy and practice of eschewing natural law.  And where are we?  I don’t think it would be exaggerating to say that we are in hell, utter hell, and if the above-linked article isn’t the perfect illustration of that type and degree of hell then I don’t know what is.

This woman gave birth to a child who was born with no anus, a missing kidney, a neurologically dysfunctional colon and bladder and a tethered spine.  He was therefore temporarily stomatized for fecal collection as an infant and would later require laxatives and enemas daily for life to eliminate waste through a surgically-constructed “anus” and would likewise need to be catheterized every 3-4 hours for life in order to pee.  The child was in pain every moment of every day and night even though his doctors were certain his conditions weren’t painful, and their negligence including misdiagnoses and complications from his spinal surgeries caused his bowel and bladder conditions to become even more debilitating and more painful than they would’ve been without their help.  And that’s saying something isn’t it.

Continue reading “The Post In Which I Mom-Shame. Sorry Not Sorry.”

How to Make Your Crohn’s Worse for $10 a Week

 

For obvious reasons these extreme budget food haul videos are very popular, where people who live in BFE rural America where a gallon of milk is $1 manage to eke out a sustenance diet on almost no money.  I’ve lived on these extreme budget diets myself for many years, where “beans and torts” was a staple and I could almost never afford a $5 block of cheese but when I could, mmmm, cheese.  What a treat!

These days of course, as a Crohn’s patient, there are more limitations on my diet than a lack of funds although as I am disabled and mostly unable to work, that limitation still applies too.  While I have managed to remain medically stable with no hospital visits or emergencies for almost 5 years due to “lifestyle changes” and importantly, daily marijuana use, I am still severely limited in what I can eat.  For example, through painful trial and error, and as corroborated by the medical literature as well as anecdotal evidence/reports from other patients, I have learned that I, like most Crohn’s patients, am severely lactose intolerant.  For me and many Crohn’s patients, it would be less (well, equally) painful to eat industrial solvent than most dairy products including milk, soft cheese and ice cream.

And since Lactaid and other lactose-nullifying agents don’t work for me to make dairy products tolerable, I also think it’s the proteins in dairy and not just the lactose/sugar I’m reacting to, which makes sense: it seems to be proteins in food that my immune system is attacking which makes eating most foods impossible.  To be even more specific, it seems to be genetically modified proteins — in other words, GMOs — that give me the most trouble.  But genetically modified or not, I cannot tolerate most dairy at all.

The woman in the above vid was able to get a gallon of milk for a dollar, which in most parts of the country is unheard of — it’s usually closer to $4 if not $5.  But as a Crohn’s patient who cannot tolerate most dairy, even if I could get 10 gallons of milk for a nickel I couldn’t drink it, blend it with other things or cook with it.  And of course, a lot of premade and processed foods contain dairy and so are also inedible.  Hard cheese is still on the table and I still look forward to that budget-busting block of cheese when I can afford it.  Of course, now it’s more like $12 and it has to be organic. 

Continue reading “How to Make Your Crohn’s Worse for $10 a Week”

A Note to the Turmeric and Yoga Crowd. tl;dr. You Aren’t That Sick.

Let me preface this note by saying that I was able to somewhat control my Crohn’s symptoms for 30 fucking years before I got sick.  And when I say “sick” I mean sick-sick.  The kind that is undeniably disabling, mostly doesn’t respond to treatment and never goes away.

Because I have explored and/or experienced these things firsthand, I know all about prescription and over the counter medication including oral, topical and other traditional medications, as well as Chinese medicine; homeopathy; reflexology; chiropractic; Ayurveda; herbal remedies and tonics; restrictive diets and enteral feeds; probiotics and fermented foods; vitamins, minerals and other supplements; trendy exercise programs and basic ones too; every form of detox, cleanse, fast and purge imaginable (and then some); acupuncture/acupressure/cupping/spooning; aromatherapy; crystal and precious metals therapies; therapeutic massage; meditation and relaxation practices; binaural beats and sound therapy; infrared therapy; Reiki and other energy work; atheist-prayer; talk therapy and otherwise working out your issues; knock-you-down-to-build-you-back-up emotional bootcamps; cutting “toxic people” and things out of your life; letting go and letting God; and thinking about something else for awhile.  Did I miss anything?  Jesus.

I’ve done it all and I’ve been doing it all for a very long time.  This is not my first day, or year, or decade with alternative therapies: I was avoiding nightshades while some of you were still eating French fries with your Happy Meals.  Think about that shit a minute.  I’ve been doing every alternative therapy imaginable since before many of you were even born.  And certainly before any of this shit became cool, or easily accessible, or at all normalized and/or mainstream. 

Potatoes (and therefore French fries) are a nightshade BTW, for anyone who doesn’t know.  And nightshades are known to be inflammatory.  I recently had an old family friend clue me into the harm nightshades can cause.  I recall trying to clue people into that in 1992 when I first learned about it but whatever right?  He figured it out 30 years later, after being in pain for decades and after having both knees replaced.  Good job dude.  Seriously, well fucking done.  These are the people, and the kinds of people, who are giving me advice.  It is, in a word, maddening.

I’ve also been keeping up with the research.  I research Crohn’s and other medical conditions weekly if not daily because I am interested in it and interested in the social commentary around it.  Where there is none, or nothing interesting, I create social commentary about it on this blog.  I know about fecal transplants and have written about it here, I know about so-called “Functional Medicine” and have written about that here, I know about stem-cell therapy (shudder) and Ketamine therapy.  I know that there is a potential gene therapy in the pipeline which I will probably never get to try.  Because these things cost money and are gatekept and are otherwise inaccessible and/or unsustainable over time.  We have been over this.  Even if these things work, there are reasons besides not knowing about it that prevent people from accessing them long term or at all.  Have you heard of?  Have you tried?  Yes.  Probably.  Seriously, stop wasting my fucking time.*

Continue reading “A Note to the Turmeric and Yoga Crowd. tl;dr. You Aren’t That Sick.”

Of All The Things I’ve Lost, I Miss My Mind The Most. Ft. Joker

I recently wrote on my Patreon about Dave, my new disability advocate who seemed like he was going to be helpful for once.  Where my previous advocate was good at bleating on endlessly about my alleged “rights” as a disabled person, wasting my time and energy listening to her while not actually helping me gain access to resources, my new advocate put on a seriously impressive show.  Because I don’t have a car and am generally too sick to walk or ride my bike more than a couple of blocks, and likely too sick to drive even if I had a car, he arranged to pick me up for our appointments and afterwards took me back home.

Because I no longer possess executive function and cannot consistently or reliably complete tasks that require it (read: the stuff corporate executives pay other people to do for them, particularly female people, namely secretaries, wives and others) this man filled out applications for me, doing some of them online, addressed and mailed the ones going out of town and hand-delivered the rest.  This was almost unbelievably (!) helpful and I felt cautiously optimistic that things might finally be on the right track: a track towards getting me the disability and need-based benefits I’m entitled to as a seriously ill person with a disabling incurable, progressive disease.

To wit, Social Security benefits, into which I have paid since I started working when I was 15 and which they will just give to me freely if I live long enough but for which I have to beg in order to receive now, and housing, food and cash assistance that will help me stay in my little apartment, run my small business and somewhat control my environment and my access to climate control/lights/running water/refrigeration/toilet etc. and privacy and relative peace in which to care for my 2 adopted shelter cats and manage the daily pain and indignities of my disabling autoimmune disease.

The online application for SSD was returned to me in hardcopy to review, sign and return.  lol.  Along with a notice that if I want to also apply for SSI, the “other” form of disability-based benefits that’s basically exactly the same as SSD and as far as I know requires mostly the same information sent to the same place, I had to do a separate application for that.  lol.  The application for food and cash assistance was “never received” by social services, according to social services, even though Dave hand-delivered it and watched them time/date stamp it himself.  lol.

Continue reading “Of All The Things I’ve Lost, I Miss My Mind The Most. Ft. Joker”

More Evidence of Autoimmunity? Surgery “Complications” and Delayed Healing from Medicalized Trauma

This is mommy vlogger Bonnie Hoellein.  I have written about this woman before after both she and her sister were constantly vlogging about crapping themselves in public and I wondered aloud if one or both of them suffer from autoimmune conditions, specifically inflammatory bowel disease including ulcerative colitis or the hideous, disabling disease I suffer from, Crohn’s disease.

In the last year or so, Bonnie has had at least 2 rounds of cosmetic surgeries to correct various things she didn’t like about her body.  Both times, she suffered horrific complications from the surgery including delayed healing, infections, and what her husband has described as being at “death’s door.”  Based on my research this woman’s surgical complications and delayed healing from medicalized trauma is more evidence that she probably has an undiagnosed (or even a diagnosed yet publicly undisclosed) autoimmune condition.

Whether or not she knows she is ill, this woman — like a lot of women surely — keeps putting her health and life in danger by undergoing elective surgeries.  The medical research indicates that autoimmune patients do indeed suffer from delayed and complicated wound healing:

Continue reading “More Evidence of Autoimmunity? Surgery “Complications” and Delayed Healing from Medicalized Trauma”

Welcome Mumsnutters!

The Mumsnet community has found this blog and are intelligently discussing the extensive content largely insulting and degrading me, personally, over my previous antinatalist posts — 2 entire posts out of nearly 100 comprising this project which is about surviving (and not surviving) as a chronically ill female in end-stage capitalism and patriarchy.  I suppose the Mums’ days aren’t full up enough what with the extreme demands of catering to their fuck trophies and future soldiers, rapists and victims, otherwise known as children under the same global system, and asking each other whether they are “being unreasonable” for wanting to be regarded as human beings by their male owners.

The Mums at Mumset also believe that talking to the men at Mumset — the Duds, I guess? — about feminism is a good use of their time.  The Mum who started this discussion also apparently thinks it’s just duckie to ask impregnators (and the impregnated) what they think about antinatalism, as if the strong bias towards natalism on Mumsnet and in a global capitalist patriarchy in general isn’t obvious.  Yes the Mums and Duds on Mumsnet seem to think that natalists and pro-natalists are the endangered cognitive minority in need of protection from the handful of antinatalists that exist on the internet and who do not appear to exist anywhere in real life because they and the antinatalist perspective are routinely and systematically silenced.

Continue reading “Welcome Mumsnutters!”

The Diagnostics Racket. Ft. Scooby Doo.

This needn’t be a long post but I was just thinking about how disingenuous it is to break up bodies into “parts” and “systems” in order to diagnose what’s wrong with sick people as if it matters.  Sick is sick, and if anyone were being honest about any of this we would all admit that what sick people need, more or less universally, is marijuana and a clean, safe environment in which to convalesce and to maybe or maybe not “recover.”  Some things have no cure.  We know that.

Marijuana works for everything, for every “part” and every “system” (the body/mind as a whole IOW) and this has been known by humans for thousands of years.  Playing dumb and worse, subjecting sick humans to inherently necrophilic compartmentalization in any form in order to heal them is not going to work.  Stabbing sick people in the bone to see if they have leukemia — when we already know that marijuana is a the safe and effective treatment both for leukemia and things that mimic leukemia — is simply cruelty.  Get it?  Subjecting anyone’s allegedly loved one to a bone-stabbing for no good reason — and I just showed that there isn’t a good reason — is cruelty.  And friends and family (and doctors obvs) should be ashamed for doing this but when it comes to the diagnostic racket people seem pretty shameless.  It frankly disgusts me.

You all just want to play dumb, acting like marijuana and a clean, safe place to convalesce isn’t clearly, obviously and universally what’s needed in every case.  Your ignorance is cartoonish.  You sound exactly like Scooby Doo in my exhausted fed up and terminally inflamed brain.

Sick person: I need real medicine that works in the first place and to stop being made worse in the second.

Everyone:  RUUUUTTTTT?  Rye ron’t ret it!

Sick person: The things I need cost money and I am unable to earn money anymore because sick.

Everyone: RUUUUTTTTTT?  Rye ron’t rav renny runny!*

* Obviously I understand that not everyone has money.  But one, a lot of people have a lot more money than they are willing to admit, they just have other priorities.  Also, there is a whole conversation to be had around the fact that sick people aren’t getting what they need, and that conversation needn’t center the finances of one person or one family.  If you aren’t the one who’s sick the conversation should NEVER center on you, it’s not about you.  RUUUUTTTTT?  Yeah.

Comments Open.

8th Anniversary of Fukushima Nuclear Disaster. A 3/11 Post. PS. Radiation Causes Inflammation and Autoimmune Disease.

Today is the 8th anniversary of the nuclear disaster at Fukushima Daiichi nuclear power plant in Japan.  On this day 8 years ago — 3/11/11 — Japan experienced a 9.1 earthquake and resulting tsunami that destroyed a large portion of its eastern seaboard and caused at least 4 nuclear reactors to melt down, irradiating the facility and surrounding landscape with nuclear fuel.  There were multiple detonations at the site in the following days which spewed nuclear fuel rods into the air, water and soil.  The contamination of the Pacific ocean as well as the air at the coastline of Japan quickly spread around the world particularly the northern hemisphere.  Obviously, the Hawaiian islands and the west coast of North America including Canada, the United States and Mexico were hit soonest and hardest. This official model of the path of the contamination plume is taken from NOAA’s website here.  NOAA is the National Oceanic and Atmospheric Administration (the US government).  Of course, since the nuclear material has yet to be effectively contained on site and likely never will be, the plume coming out of Japan has never stopped.  It has been an ongoing circulating plume starting anew and aggregating every single day via ocean currents and the atmospheric jetstream for 8 years by now.

Most people and especially most sick people do not have the energy or even the cognition needed to thoroughly research this event and to come to rational conclusions about it including the potential and actual effects on our health and lives.  There is also an active and lavishly funded propaganda campaign that’s been running on us in full force since the event intended to cover up both its occurrence in the first place and its completely predictable effects on the environment and in turn on our planet’s biomass (read: food, pets and ourselves) in the second.  So there’s that.

Continue reading “8th Anniversary of Fukushima Nuclear Disaster. A 3/11 Post. PS. Radiation Causes Inflammation and Autoimmune Disease.”

Cannabis Refugee, Esq. One Year Later. (Meta Discussion)

As my readers may’ve seen or sensed from the recent comments and content on this blog, I have become disillusioned with the CRE writing project and may decide not to continue writing about my experience as a Crohn’s patient trying to survive outside the Western medical system that was not helping me and was only making me worse.  As far as I can tell, this project has not inspired any additional writing or critical thinking on this subject, my posts have not been widely shared or inspired much interesting feedback, and this work has not opened up any additional opportunities for me in the way of writing or activism.  Of course, those were not the reasons I started this blog in the first place but they are to be considered when looking into the future of this project and whether it is in my or anyone’s best interest that it continue.

My original intent in starting this project nearly one year ago was to document my experiences as a seriously ill woman for whom conventional medical treatments were not working including the social, financial and health-related fallout of this system that seems designed to control and punish sick people while we carry the blame and shame for Western medicine’s failures and even its lies.  At times my health and financial situation have been so precarious that I actually believed (and still do believe) that I am going to die here, alone and in the middle nowhere, and I wanted the truth about what happened to me to be known or at least knowable by those who would wonder what the hell could’ve possibly happened that led to that sad and lonely end.

Continue reading “Cannabis Refugee, Esq. One Year Later. (Meta Discussion)”

The Absurdity of the Euthanasia Discussion in the Absence of Effective Medicine and Social Support for the Seriously Chronically Ill.

I cannot tell you how absurd it is to be seeking euthanasia as the final end to this awful Crohn’s journey when I’m not suicidal and I don’t want to die.  What I do want, all of which is illustrated brilliantly in this clip, is 1. effective medical treatment for my disease, or failing that, consistent access to effective pain and symptom relief, in my case medical marijuana which has been used successfully for thousands of years to ease specifically gut ailments and which use is supported in contemporary peer-reviewed medical literature particularly for Crohn’s; 2. social support with fulfilling basic tasks and the activities of daily living like shopping, cleaning, cooking and the like; and 3. to be relieved of external constraints that make existing as a chronically ill person a living fucking hell and a consistent nightmare, which constraints have nothing to do with being ill and everything to do with being an oppressed person and failed consumer/producer under capitalism and patriarchy.  Constraints like poverty.  Fear of (and actual) male violence.  Disability-based (and all) discrimination.  Things like that.

But I can’t have any of those things — effective medical treatment, social support, and freedom from oppression — because under the current system those things don’t actually exist so the easiest thing for everyone would be for me to simply disappear or to have never been born in the first place.  Failing that we have euthanasia otherwise known as assisted dying or medically assisted suicide.  Of course, poor and other unsupported “euthanasia candidates” — who likely don’t have $12,000 and the good health and social support needed to have their efforts rubber stamped/make it official — just know and experience this process as good old-fashioned suicide.  Who knows what Chris Rock really thinks about euthanasia for seriously ill and dying people but he’s not wrong to see the absurdity in it, at least under the current system.

Continue reading “The Absurdity of the Euthanasia Discussion in the Absence of Effective Medicine and Social Support for the Seriously Chronically Ill.”

Our Mothers Want Us Dead. Another Antinatalist Post.

I have spoken at length with other women who, throughout their lives, have been abused, neglected, torn/worn down, palmed off and otherwise unsupported by their mothers to the point that the only logical outcome of this treatment would be our untimely deaths, either from the abuse/neglect itself, from the completely predictable male violence and neglect we are subjected to when we choose heterosexual relations/relationships for survival, or via suicide.  The obvious fact that motherhood is the end result of misogyny, specifically female reproductive abuse including unwanted or “survival” sex and rape, makes this non-attachment to children foreseeable and ordinary and insures that it will never be discussed as if it were either.

I have written here before about what “family” means to me, and from where I’ve always stood, family appears to be the source of overwhelming grief, torture, humiliation, powerlessness and pain including medicalized torture, humiliation and pain if you were “privileged” enough to be born to Western medical professionals like I was.  (Of course, the tools of any trade and any patriarchal conditioning can and will be used by parents to torture children, especially girls.)  Family, if we are honest, is the source and location of almost all of girls’ and women’s suffering including being subjected to abusive male “sex” practices that only lead to one place for female-bodied people: pregnancy and motherhood.  Motherhood is a biological function exactly as romantic as shitting if we are honest about it and children are treated like shit for exactly that reason including grown “children” who were never part of the families they were born into in any human sense.  More like a shit-on-the-bottom-of-your-shoe sense.  Oops.  For more forward-thinking (or adaptable) folk perhaps in a compost-sense: a useful object that better prove to be useful or else.

A goodly portion of us were not wanted by our mothers and common sense bears that out; most of us know how difficult it is to have consequence-free recreational intercourse (or rape) and we activate against pregnancy for decades and not just because of the “timing” although for some that may be part of it.  For anyone who is still unsure, the ways our mothers often treat us make it clear that we were unwanted by her, or at least that we are unwanted now.  Although I shouldn’t be I am taken aback every time I see chronically ill people commenting in groups and on message boards how they are treated almost universally poorly by their own families — including by their own mothers — now that they are sick.  The last time I spoke with my own mother she blamed and dismissed me for being sick and told me I should move to a bigger city “because they have nicer homeless shelters there.”

Why I should be homeless when my mother and my entire family all own their own homes (well, the bank owns them) was not addressed, nor was the fact that my mother only “owns” her home in the first place because she was treated generously (albeit begrudgingly) when she divorced a man who could well afford it.  The fact that she is currently sheltered has nothing to do with her own responsibility, good choices or inherent worth even though she pretends, or may even believe, that it does.  But I digress.

Continue reading “Our Mothers Want Us Dead. Another Antinatalist Post.”

Crohn’s Disease is a Terminal Illness. Coming to Terms.

After researching this disease for going on 6 years now, I believe I have come to a rational conclusion about Crohn’s disease which is that it is not a so-called incurable progressive disease but a fatal one: based on all the evidence including anecdotal evidence from patients themselves I now believe that Crohn’s disease is a terminal illness.  I have more or less concluded that before but for some reason I hadn’t yet come to terms with it.  It’s not easy to come to terms with something like that but not because I suffer from what is almost certainly going to cause my untimely death but because everyone, and I mean absolutely everyone is lying their asses off about Crohn’s disease including how “treatable” it is, what kind of quality of life Crohn’s patients can reasonably expect, how predictably disabling it is and why, and how it’s probably going to end.

But before we get to the end it’s important to start at the beginning and admit what Crohn’s disease is at base: Crohn’s patients, including myself, have to medicate in order to eat.  And that is serious, very serious indeed.  If there is anything that is any less compatible with life than a disease that prevents the sick person from eating I can’t think of it.  A disease that prevented the sick person from breathing wouldn’t be any less compatible with life than Crohn’s is, it would just be quicker.

Continue reading “Crohn’s Disease is a Terminal Illness. Coming to Terms.”

Medically Futile Care as Ritual. Part II. The Political Intent and Effect of Flogging Corpses, Framing Zombification as “Life Support” Etc. What’s Going On?

In my last post I wrote about an article published in a British medical journal that admitted that medically futile care — care that is not expected to increase a sick or dying patient’s health or prolong their life — has ritualistic intent and effect on the population at large.  I did not pay to access the full article and the abstract did not detail the ritualistic intent/effect so I was left to surmise for myself what the intent and effects are on society as a whole when Western medicine in particular flogs corpses with no reasonable chance of being revived; prolongs the dying process with aggressive and violent transplants and surgeries, resuscitation attempts and so-called “life support” including intravenous nutrition and hydration, mechanical breathing and filtration and the like; artificially delivers and maintains genetically or congenitally nonviable infants instead of letting them die naturally and so on.

I have observed previously that Western medicine attempting to treat untreatable, incurable and progressive disease is also ritualistic and does not benefit the patient except to function as a means of compliance and confession where sick people, especially sick women, are expected to confess their sins of and accept a flogging for being failed producers/consumers under capitalism and patriarchy.  Thus I would include such ineffective care under the heading of ritualistic medically futile care although the article I was responding to did not address or include that type of futility.  As a radical feminist I reject patriarchal rituals on their face and refuse to participate in them at all where and when I have a choice.  I have resisted using the capitalistic patriarchal (Western) medical doctor’s office as confessional, and refused to accept the flogging of brutal treatments that will not increase my overall quality of life or even reliably delay my death, instead choosing to treat my otherwise intractable pain and symptoms with medical cannabis.

So the existence of medically futile care as (capitalistic, patriarchal) ritual does not seem to be at issue, being freely admitted to by researchers who frame these rituals as having a positive effect on society — an effect which transcends the abuse and pain suffered by individual patients who are subjected to it but do not themselves directly benefit from it in terms of an increased quality or even quantity/length of life.  So what exactly is the specific ritualistic intent and effect on society at large of flogging corpses, creating and maintaining zombified “undead” and/or profoundly impaired patients on so-called life support, artificially reducing natural levels of infant mortality and so on?

Continue reading “Medically Futile Care as Ritual. Part II. The Political Intent and Effect of Flogging Corpses, Framing Zombification as “Life Support” Etc. What’s Going On?”