#HighRiskCOVID19. You Don’t Say. Shame v. Cause and Effect (Again)

Apparently, social media is currently alight with a new hashtag, #HighRiskCOVID19 which is being used by people with “underlying medical conditions” who are at greatest risk, besides the elderly, of contracting and becoming dangerously ill with the disease.  Some of these people, but not all, are autoimmune patients and others voluntarily taking immunity-decimating Big Pharma medications to “treat” their underlying diseases including cancer, rheumatoid arthritis, lupus, and Crohn’s disease.  The message is intended to convince “well” people to stay home in order to not risk spreading the virus throughout communities and ultimately to those who are already seriously or chronically ill.

Putting aside the fact that these drugs often don’t even work, work well, or work for long to treat the pain and symptoms of autoimmune disease, despite the lies Big Pharma propaganda spews everywhere — lies that sick people’s friends and family often believe instead of believing the testimonies and lived experience of the people they supposedly love — these so-called “biologic” and chemotherapy drugs are prescribed to autoimmune patients because they destroy the sick person’s immune system, thereby (theoretically) preventing it from attacking the sick person’s own tissues.  Of course, destroying anyone’s natural immunity also makes them more susceptible to opportunistic infections and environmental pathogens like the common cold, flu and the novel Coronavirus or COVID19.  Essentially, autoimmune patients taking immunity-decimating drugs have allowed doctors to give them AIDS and all the complications of full-blown untreated AIDS.

In contrast, actual HIV-positive people with full-blown AIDS (assuming they have access to health care) are aggressively treated with an immunity-bolstering protocol and many are able to avoid the hideous outcomes that were a death sentence for AIDS patients in the 80s including lethal fungal infections/thrush, pneumonia and cancer.  But no one is bolstering autoimmune patients’ purposely fucked-up immune systems because that would defeat the point of letting doctors give them therapeutic AIDS to treat their AI.  In fact, immunocompromised AI patients, unlike those with full-blown untreated AIDS due to HIV, are fully expected by everyone to just go back to their previous lives, including returning to full-time work, like they aren’t sick at all.  Somehow having both AI and AIDS = healthy.  Some of them may — or may not — be told to wash their hands and avoid sick people, which is impossible innit.

Many AI patients are not even given the benefit of informed consent and are not fully informed of the very real and expected consequences of destroying their natural immunity to environmental pathogens.  Patients often aren’t even told how the medications they are taking are expected to work, or if they are “informed” they are too sick and cognitively impaired to even understand what they are hearing.  In other words, they don’t know they are consenting to essentially contracting AIDS.  If they do understand it, they may be too sick to even care.*

There is also the issue, isn’t there, of congenitally nonviable infants being handed over to Big Medicine to essentially animate them well enough to be lifelong victims and consumers of patriarchal Western medicine, where many if not all of these infants are immunocompromised and/or have reduced lung capacity and lifelong serious “preexisting medical problems” due to their congenital malformations or premature births.  Before that, many Western women take prescription medications meant to prevent miscarriage, when miscarriage has historically (and prehistorically surely) prevented nonviable and congenitally malformed fetuses from being born at all.  Get it?  Good.  Enter the novel Coronavirus.

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The Post In Which I Mom-Shame. Sorry Not Sorry.

This was and is the absolute last straw.  I have been writing health and medical-related content on this blog for almost 2 years now and I have deliberately avoided this topic because I knew how it would be received.  Mothers have been criticized and punished for their choices (and their femaleness) forever and now that we are all enlightened and feminist and shit, mothers and motherhood are beyond reproach.  I know because the internet said so!  Mom-shaming is right out, no one is allowed to criticize women who conceive, gestate, birth and/or raise children for anything because liberal feminism and besides, under patriarchy, women’s and mothers’ choices are artificially limited and (therefore) coerced so the fucked up things women “choose” for themselves and their children are not women’s fault.  Radical feminism supposes that the things women choose are not even choices at all.

First as a liberal feminist and later as a radical, I accepted one or the other of these rationalizations for a long time and refused to criticize women and mothers on feminist grounds, where women as oppressed people previously and/or currently lack the social and political power to be fully actualized, engaged human beings and the central agents in their own lives.  Between feminist arguments centering agency and non-agency (liberal and radical viewpoints respectively) women and mothers have secured a free pass to do and choose anything, absolutely anything, regardless of the consequences to themselves or to other people, or to animals, or to the living planet.  Rather than examining cause and effect — meaning the intended and unintended consequences of our action and inaction — somehow “shame” has become the focus and women are not to be shamed, and by shamed we apparently mean held accountable for their own actions.

For one reason and then another, cause and effect have been deemed irrelevant to women and women’s choices and women’s interactions with our world — well, with mensworld as it were.  Before feminism, women were simply expected to do what they were told and they usually did.  But cause and effect are always relevant so long as we are alive on this planet because cause and effect is consistent with natural law.  Get it?  There are laws that have existed longer than humans, longer than civilization, longer than patriarchy, and which sure as hell predate feminism, and for a long, long time we have acted as if these natural laws were unimportant, or less important than other things.  Less important than men’s laws.  More recently, less important than not-shaming women.  This has been our mindset for thousands of years by now — at least 10,000 years by my estimation, which was approximately the beginning of agriculture where humans sought to overcome or tame nature to our own ends.

We did this, we chose this, and we have been doing it and choosing it for a long time.  Where we are now could be said to be the result of 10,000 years of that unnatural/patriarchal policy and practice of eschewing natural law.  And where are we?  I don’t think it would be exaggerating to say that we are in hell, utter hell, and if the above-linked article isn’t the perfect illustration of that type and degree of hell then I don’t know what is.

This woman gave birth to a child who was born with no anus, a missing kidney, a neurologically dysfunctional colon and bladder and a tethered spine.  He was therefore temporarily stomatized for fecal collection as an infant and would later require laxatives and enemas daily for life to eliminate waste through a surgically-constructed “anus” and would likewise need to be catheterized every 3-4 hours for life in order to pee.  The child was in pain every moment of every day and night even though his doctors were certain his conditions weren’t painful, and their negligence including misdiagnoses and complications from his spinal surgeries caused his bowel and bladder conditions to become even more debilitating and more painful than they would’ve been without their help.  And that’s saying something isn’t it.

Continue reading “The Post In Which I Mom-Shame. Sorry Not Sorry.”

How to Make Your Crohn’s Worse for $10 a Week

 

For obvious reasons these extreme budget food haul videos are very popular, where people who live in BFE rural America where a gallon of milk is $1 manage to eke out a sustenance diet on almost no money.  I’ve lived on these extreme budget diets myself for many years, where “beans and torts” was a staple and I could almost never afford a $5 block of cheese but when I could, mmmm, cheese.  What a treat!

These days of course, as a Crohn’s patient, there are more limitations on my diet than a lack of funds although as I am disabled and mostly unable to work, that limitation still applies too.  While I have managed to remain medically stable with no hospital visits or emergencies for almost 5 years due to “lifestyle changes” and importantly, daily marijuana use, I am still severely limited in what I can eat.  For example, through painful trial and error, and as corroborated by the medical literature as well as anecdotal evidence/reports from other patients, I have learned that I, like most Crohn’s patients, am severely lactose intolerant.  For me and many Crohn’s patients, it would be less (well, equally) painful to eat industrial solvent than most dairy products including milk, soft cheese and ice cream.

And since Lactaid and other lactose-nullifying agents don’t work for me to make dairy products tolerable, I also think it’s the proteins in dairy and not just the lactose/sugar I’m reacting to, which makes sense: it seems to be proteins in food that my immune system is attacking which makes eating most foods impossible.  To be even more specific, it seems to be genetically modified proteins — in other words, GMOs — that give me the most trouble.  But genetically modified or not, I cannot tolerate most dairy at all.

The woman in the above vid was able to get a gallon of milk for a dollar, which in most parts of the country is unheard of — it’s usually closer to $4 if not $5.  But as a Crohn’s patient who cannot tolerate most dairy, even if I could get 10 gallons of milk for a nickel I couldn’t drink it, blend it with other things or cook with it.  And of course, a lot of premade and processed foods contain dairy and so are also inedible.  Hard cheese is still on the table and I still look forward to that budget-busting block of cheese when I can afford it.  Of course, now it’s more like $12 and it has to be organic. 

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A Note to the Turmeric and Yoga Crowd. tl;dr. You Aren’t That Sick.

Let me preface this note by saying that I was able to somewhat control my Crohn’s symptoms for 30 fucking years before I got sick.  And when I say “sick” I mean sick-sick.  The kind that is undeniably disabling, mostly doesn’t respond to treatment and never goes away.

Because I have explored and/or experienced these things firsthand, I know all about prescription and over the counter medication including oral, topical and other traditional medications, as well as Chinese medicine; homeopathy; reflexology; chiropractic; Ayurveda; herbal remedies and tonics; restrictive diets and enteral feeds; probiotics and fermented foods; vitamins, minerals and other supplements; trendy exercise programs and basic ones too; every form of detox, cleanse, fast and purge imaginable (and then some); acupuncture/acupressure/cupping/spooning; aromatherapy; crystal and precious metals therapies; therapeutic massage; meditation and relaxation practices; binaural beats and sound therapy; infrared therapy; Reiki and other energy work; atheist-prayer; talk therapy and otherwise working out your issues; knock-you-down-to-build-you-back-up emotional bootcamps; cutting “toxic people” and things out of your life; letting go and letting God; and thinking about something else for awhile.  Did I miss anything?  Jesus.

I’ve done it all and I’ve been doing it all for a very long time.  This is not my first day, or year, or decade with alternative therapies: I was avoiding nightshades while some of you were still eating French fries with your Happy Meals.  Think about that shit a minute.  I’ve been doing every alternative therapy imaginable since before many of you were even born.  And certainly before any of this shit became cool, or easily accessible, or at all normalized and/or mainstream. 

Potatoes (and therefore French fries) are a nightshade BTW, for anyone who doesn’t know.  And nightshades are known to be inflammatory.  I recently had an old family friend clue me into the harm nightshades can cause.  I recall trying to clue people into that in 1992 when I first learned about it but whatever right?  He figured it out 30 years later, after being in pain for decades and after having both knees replaced.  Good job dude.  Seriously, well fucking done.  These are the people, and the kinds of people, who are giving me advice.  It is, in a word, maddening.

I’ve also been keeping up with the research.  I research Crohn’s and other medical conditions weekly if not daily because I am interested in it and interested in the social commentary around it.  Where there is none, or nothing interesting, I create social commentary about it on this blog.  I know about fecal transplants and have written about it here, I know about so-called “Functional Medicine” and have written about that here, I know about stem-cell therapy (shudder) and Ketamine therapy.  I know that there is a potential gene therapy in the pipeline which I will probably never get to try.  Because these things cost money and are gatekept and are otherwise inaccessible and/or unsustainable over time.  We have been over this.  Even if these things work, there are reasons besides not knowing about it that prevent people from accessing them long term or at all.  Have you heard of?  Have you tried?  Yes.  Probably.  Seriously, stop wasting my fucking time.*

Continue reading “A Note to the Turmeric and Yoga Crowd. tl;dr. You Aren’t That Sick.”

Of All The Things I’ve Lost, I Miss My Mind The Most. Ft. Joker

I recently wrote on my Patreon about Dave, my new disability advocate who seemed like he was going to be helpful for once.  Where my previous advocate was good at bleating on endlessly about my alleged “rights” as a disabled person, wasting my time and energy listening to her while not actually helping me gain access to resources, my new advocate put on a seriously impressive show.  Because I don’t have a car and am generally too sick to walk or ride my bike more than a couple of blocks, and likely too sick to drive even if I had a car, he arranged to pick me up for our appointments and afterwards took me back home.

Because I no longer possess executive function and cannot consistently or reliably complete tasks that require it (read: the stuff corporate executives pay other people to do for them, particularly female people, namely secretaries, wives and others) this man filled out applications for me, doing some of them online, addressed and mailed the ones going out of town and hand-delivered the rest.  This was almost unbelievably (!) helpful and I felt cautiously optimistic that things might finally be on the right track: a track towards getting me the disability and need-based benefits I’m entitled to as a seriously ill person with a disabling incurable, progressive disease.

To wit, Social Security benefits, into which I have paid since I started working when I was 15 and which they will just give to me freely if I live long enough but for which I have to beg in order to receive now, and housing, food and cash assistance that will help me stay in my little apartment, run my small business and somewhat control my environment and my access to climate control/lights/running water/refrigeration/toilet etc. and privacy and relative peace in which to care for my 2 adopted shelter cats and manage the daily pain and indignities of my disabling autoimmune disease.

The online application for SSD was returned to me in hardcopy to review, sign and return.  lol.  Along with a notice that if I want to also apply for SSI, the “other” form of disability-based benefits that’s basically exactly the same as SSD and as far as I know requires mostly the same information sent to the same place, I had to do a separate application for that.  lol.  The application for food and cash assistance was “never received” by social services, according to social services, even though Dave hand-delivered it and watched them time/date stamp it himself.  lol.

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More Evidence of Autoimmunity? Surgery “Complications” and Delayed Healing from Medicalized Trauma

This is mommy vlogger Bonnie Hoellein.  I have written about this woman before after both she and her sister were constantly vlogging about crapping themselves in public and I wondered aloud if one or both of them suffer from autoimmune conditions, specifically inflammatory bowel disease including ulcerative colitis or the hideous, disabling disease I suffer from, Crohn’s disease.

In the last year or so, Bonnie has had at least 2 rounds of cosmetic surgeries to correct various things she didn’t like about her body.  Both times, she suffered horrific complications from the surgery including delayed healing, infections, and what her husband has described as being at “death’s door.”  Based on my research this woman’s surgical complications and delayed healing from medicalized trauma is more evidence that she probably has an undiagnosed (or even a diagnosed yet publicly undisclosed) autoimmune condition.

Whether or not she knows she is ill, this woman — like a lot of women surely — keeps putting her health and life in danger by undergoing elective surgeries.  The medical research indicates that autoimmune patients do indeed suffer from delayed and complicated wound healing:

Continue reading “More Evidence of Autoimmunity? Surgery “Complications” and Delayed Healing from Medicalized Trauma”