Urgent request: office supplies needed (Patreon link within)

Hi everyone.  This is coming at a bad time as my business is slow and I am extremely short on funds, but I desperately need a new printer.  I had to replace an HP printer I had for several years when the print head died for a second time.  I got a new printer last fall and it’s been a horrible ink hog that I have spent hundreds of dollars on ink to keep going.  After maybe 2 weeks of quality printing, to even get it to print at all takes 30 minutes of cleaning and aligning print heads every single time, and even then I only get a couple more weeks worth out of it before it says it needs more ink.  I have to print about 12 pages a week of consistently high quality.  This printer is not up to the task.  I also need a few different office supplies.

If anyone has an unused gift card to Walmart, Office Depot, Best Buy, Ebay or Amazon, or is able and willing to send an extra donation this month, $300 would go a long way to getting me a decent printer, some extra ink cartridges and office supplies.  For $100 I could get some more ink and just keep using this printer for another couple of months. $30 would get me some office supplies.

For anyone who wants to, donations can be made on my Patreon page.  My email address is posted there in a private post for anyone who wants to send gift cards or correspondence.

I have received $100 already.  Thank you for reading and thanks for your support, we really appreciate it.

How to Make Your Crohn’s Worse for $10 a Week

 

For obvious reasons these extreme budget food haul videos are very popular, where people who live in BFE rural America where a gallon of milk is $1 manage to eke out a sustenance diet on almost no money.  I’ve lived on these extreme budget diets myself for many years, where “beans and torts” was a staple and I could almost never afford a $5 block of cheese but when I could, mmmm, cheese.  What a treat!

These days of course, as a Crohn’s patient, there are more limitations on my diet than a lack of funds although as I am disabled and mostly unable to work, that limitation still applies too.  While I have managed to remain medically stable with no hospital visits or emergencies for almost 5 years due to “lifestyle changes” and importantly, daily marijuana use, I am still severely limited in what I can eat.  For example, through painful trial and error, and as corroborated by the medical literature as well as anecdotal evidence/reports from other patients, I have learned that I, like most Crohn’s patients, am severely lactose intolerant.  For me and many Crohn’s patients, it would be less (well, equally) painful to eat industrial solvent than most dairy products including milk, soft cheese and ice cream.

And since Lactaid and other lactose-nullifying agents don’t work for me to make dairy products tolerable, I also think it’s the proteins in dairy and not just the lactose/sugar I’m reacting to, which makes sense: it seems to be proteins in food that my immune system is attacking which makes eating most foods impossible.  To be even more specific, it seems to be genetically modified proteins — in other words, GMOs — that give me the most trouble.  But genetically modified or not, I cannot tolerate most dairy at all.

The woman in the above vid was able to get a gallon of milk for a dollar, which in most parts of the country is unheard of — it’s usually closer to $4 if not $5.  But as a Crohn’s patient who cannot tolerate most dairy, even if I could get 10 gallons of milk for a nickel I couldn’t drink it, blend it with other things or cook with it.  And of course, a lot of premade and processed foods contain dairy and so are also inedible.  Hard cheese is still on the table and I still look forward to that budget-busting block of cheese when I can afford it.  Of course, now it’s more like $12 and it has to be organic. 

Continue reading “How to Make Your Crohn’s Worse for $10 a Week”

Oh Dear. Greta’s Family Works in Nuclear and She Was a Chernobyl Baby

Remember when I noted that climate change activist Greta Thunberg and all so-called climate change activism is demonstrably pro-nuclear?  And when I speculated that Greta’s self-described autistic “super power” was really brain damage from likely radioactive environmental pollution, exactly the kind of environmental pollution that Greta herself never speaks about or acknowledges at all…in her work as a leader in an alleged environmental activist movement?  Well, there is now an article written on a conspiratard site that confirms both of my suspicions.  And the above vid that cites the article.

Sadly, there are no citations in the article itself on which to follow up and I don’t know what that means.  Did the writer — himself an anti-nuke activist and Hiroshima baby — just make it all up out of whole cloth?  Maybe, but we can also get pretty far down that road by simply using common sense, considering that there are a lot of radiation-damaged people in Greta’s neck of the woods.  Here is a map showing dangerous, genetically/generationally damaging Chernobyl fallout covering parts (well, almost all) of Finland, Sweden and Norway.  Greta’s mother was likely exposed to it as a child in the 80s and they all continue to bask in it today, considering that radioactive contamination stays dangerous forever and never goes away.

chernobyl_radiation

When trying to confirm the claims that Greta’s family is involved in the nuclear industry, I found this article on another conspiratard site which seems to back it up and references some intrigue, namely orphanings, adoptions and multiple name changes of her male and female ancestors that make researching her family and their connections difficult if not impossible.  Here is the part I would be interested in corroborating.  From the first conspiratard article:

Greta’s grandfather Lars Lars Ernman, is retired chief financial officer (CFO) of Sandvik, a world-leading tool-maker that manufactures saws and drills for home carpentry, and also steel pipes for nuclear power plants. In partnership with the French atomic energy giant AREVA, the Swedish manufacturer also produces drilling, tunneling and rock-crushing equipment for the global uranium-mining industry.

I also find it interesting that Greta’s ancestors are seasoned professional actors, as do the conspiratards who are starting to suspect that there’s something not-so authentic about Greta and the movement she has inspired.  A movement that both explicitly and implicitly supports nuclear power while blaming soccer moms for catastrophic weather and climate change while demonstrably not blaming one of the — if not the — largest most environmentally damaging industries this planet has ever known and will ever know again: the nuclear industry, which notoriously pumps out not merely genetic/generational mutations, illness and death but also “hot particles” which contaminate our water, soil, biomass and ourselves with literal heat.

Continue reading “Oh Dear. Greta’s Family Works in Nuclear and She Was a Chernobyl Baby”

The Welfare Gnome! It’s Like a Sock Gnome Except This One Can Actually Kill You. Ft. Joker (Again)

According to the internet, a “sock gnome” is a mythical creature that pilfers socks.  Presumably it lives in or around the dryer where you put an even number of socks in and get an odd number out.  Sometimes it gets tricksy and spits out an even number but the pairs don’t match (meaning it’s pilfered one from more than one pair) but the usual evidence that you’ve had a sock pilfered by a gnome is that there is one left over that doesn’t have a mate and the missing sock never reappears ever.  This is a real thing (if not a real gnome) and everyone knows what this means.

Well, there appears to be a similar creature that lives at Social Services and pilfers sick and poor people’s applications for welfare benefits.  Or something, idk.  I assume these creatures are related but maybe not since this gnome doesn’t play games: its goal seems to be to drive you insane before it literally kills you.  I wrote here before about an application for benefits that went missing, along with a half a dozen other boondoggles that have wasted my spoons and left me scrambling to repeat some administrative process I was barely able to complete survive the first time.

Because while a sick person’s literal inability to jump through bureaucratic hoops is actually the best evidence that someone is extremely ill, someone has decided that only those who are well enough to sing for their supper (or pursue benefits) deserve to eat, as it were.  The first application that went missing was for food stamps, while today I found out that my application to get on a 4 month waitlist to see a doctor went missing 2 months ago and has not been since heard from: although my disability advocate hand-delivered it, the application was never received.

Continue reading “The Welfare Gnome! It’s Like a Sock Gnome Except This One Can Actually Kill You. Ft. Joker (Again)”

Of All The Things I’ve Lost, I Miss My Mind The Most. Ft. Joker

I recently wrote on my Patreon about Dave, my new disability advocate who seemed like he was going to be helpful for once.  Where my previous advocate was good at bleating on endlessly about my alleged “rights” as a disabled person, wasting my time and energy listening to her while not actually helping me gain access to resources, my new advocate put on a seriously impressive show.  Because I don’t have a car and am generally too sick to walk or ride my bike more than a couple of blocks, and likely too sick to drive even if I had a car, he arranged to pick me up for our appointments and afterwards took me back home.

Because I no longer possess executive function and cannot consistently or reliably complete tasks that require it (read: the stuff corporate executives pay other people to do for them, particularly female people, namely secretaries, wives and others) this man filled out applications for me, doing some of them online, addressed and mailed the ones going out of town and hand-delivered the rest.  This was almost unbelievably (!) helpful and I felt cautiously optimistic that things might finally be on the right track: a track towards getting me the disability and need-based benefits I’m entitled to as a seriously ill person with a disabling incurable, progressive disease.

To wit, Social Security benefits, into which I have paid since I started working when I was 15 and which they will just give to me freely if I live long enough but for which I have to beg in order to receive now, and housing, food and cash assistance that will help me stay in my little apartment, run my small business and somewhat control my environment and my access to climate control/lights/running water/refrigeration/toilet etc. and privacy and relative peace in which to care for my 2 adopted shelter cats and manage the daily pain and indignities of my disabling autoimmune disease.

The online application for SSD was returned to me in hardcopy to review, sign and return.  lol.  Along with a notice that if I want to also apply for SSI, the “other” form of disability-based benefits that’s basically exactly the same as SSD and as far as I know requires mostly the same information sent to the same place, I had to do a separate application for that.  lol.  The application for food and cash assistance was “never received” by social services, according to social services, even though Dave hand-delivered it and watched them time/date stamp it himself.  lol.

Continue reading “Of All The Things I’ve Lost, I Miss My Mind The Most. Ft. Joker”

A “Rational Suicide” Note. Ft. Anne Örtegren.

This is a “suicide” note left by a ME/CFS sufferer who sought and found relief from her suffering via legal, medically assisted suicide.  She says this manifesto took her months to write, which I do not doubt a bit: it is long, detailed and polished and was written when she was feeling terrible.  She wrote it with the intent to describe her almost indescribable pain and experience, and to convince others to take action on behalf of ME/CFS sufferers, both of which are lofty communication goals when anyone is seriously ill.

Describing and convincing have been my most impossible endeavors since I’ve been seriously ill myself and I think I have mostly failed, judging by others’ reactions to everything I’ve managed to gather the physical and emotional grit to attempt to communicate: that I am seriously, hopelessly ill with an incurable, progressive disease, that there is no bottom to how bad this can get, and it matters not what anyone thinks about it.  Some things are just true regardless of whether anyone believes it.

In this note, ME/CFS patient Anne Örtegren describes symptoms and dilemmas I have experienced myself and she foresees logical outcomes to her predicament, something sick people and especially sick women are never allowed to do because catastrophization.  For example, she knows that her heightened sensitivity to light and sound will make treatment or recovery in a hospital setting impossible where the standard of care in that environment requires constant activity and interruptions, and provides no privacy and no escape from the harsh industrial lighting, interrogations by (allegedly) well meaning staff and the general hustle and bustle of capitalistic money making on the backs and bodies of sick and dying people.

That is but one example of a sick person making informed prognostications regarding likely outcomes of the things other people want to do to us, and as someone who shares these sensitivities to light and sound (and therefore an aversion to hospital settings) as but one example of our shared experience of being seriously ill, I appreciated her spelling it out.  I also feel extremely sad that she had to, and furious that no one who allegedly cared about her wellbeing including medical professionals who should be fucking sensitive to the actual needs of real patients could make the leap themselves.  There are many such examples in this letter.

See for yourselves, and understand that as illuminating and raw as this letter is, it’s also been edited by the publisher and a so-called suicide prevention expert because the bottom line everywhere appears to be that there is no such thing as rational suicide or euthanasia because well people and people who make money off of the long-term sick and dying say so.  And because living in this capitalistic, patriarchal nightmare is so hideous for so many people that “suicide contagion” exists, where just knowing that someone, somewhere had whatever it took to end themselves is likely to cause untold numbers of happy, healthy consumers with bright futures to do the same damn thing.  Yeah that’s it, let’s keep telling ourselves that.

The letter as published is reprinted below.  The unedited letter supposedly exists online somewhere if anyone cares to look and has the energy to figure out how and where the edited version differs from the original.  Comments are open below.

Continue reading “A “Rational Suicide” Note. Ft. Anne Örtegren.”