Of All The Things I’ve Lost, I Miss My Mind The Most. Ft. Joker

I recently wrote on my Patreon about Dave, my new disability advocate who seemed like he was going to be helpful for once.  Where my previous advocate was good at bleating on endlessly about my alleged “rights” as a disabled person, wasting my time and energy listening to her while not actually helping me gain access to resources, my new advocate put on a seriously impressive show.  Because I don’t have a car and am generally too sick to walk or ride my bike more than a couple of blocks, and likely too sick to drive even if I had a car, he arranged to pick me up for our appointments and afterwards took me back home.

Because I no longer possess executive function and cannot consistently or reliably complete tasks that require it (read: the stuff corporate executives pay other people to do for them, particularly female people, namely secretaries, wives and others) this man filled out applications for me, doing some of them online, addressed and mailed the ones going out of town and hand-delivered the rest.  This was almost unbelievably (!) helpful and I felt cautiously optimistic that things might finally be on the right track: a track towards getting me the disability and need-based benefits I’m entitled to as a seriously ill person with a disabling incurable, progressive disease.

To wit, Social Security benefits, into which I have paid since I started working when I was 15 and which they will just give to me freely if I live long enough but for which I have to beg in order to receive now, and housing, food and cash assistance that will help me stay in my little apartment, run my small business and somewhat control my environment and my access to climate control/lights/running water/refrigeration/toilet etc. and privacy and relative peace in which to care for my 2 adopted shelter cats and manage the daily pain and indignities of my disabling autoimmune disease.

The online application for SSD was returned to me in hardcopy to review, sign and return.  lol.  Along with a notice that if I want to also apply for SSI, the “other” form of disability-based benefits that’s basically exactly the same as SSD and as far as I know requires mostly the same information sent to the same place, I had to do a separate application for that.  lol.  The application for food and cash assistance was “never received” by social services, according to social services, even though Dave hand-delivered it and watched them time/date stamp it himself.  lol.

Now That’s Some Serious Chronic Fatigue. Spoon Theory 2.0? (Patreon Link Within)

Many chronically ill people eventually learn about the “Spoon Theory” of chronic fatigue, which is basically a way to explain to healthy people what it’s like when you no longer possess (or never had) virtually unlimited mental and physical energy to do what you want.  Because it’s always the responsibility of the weakest and sickest to explain ourselves to healthy people innit.  A person’s spoons are a visual representation of their physical and mental energy reserves for the day, where a physical or mental activity “costs” one or more spoons to perform and when the spoons are gone the sick person has no choice but to stop acting and rest.  With adequate rest and recovery time, hopefully their spoon reserves will replenish by the next day but that is not always the case.  Many days, seriously ill people may have no spoons at all.

Spoon Theory was described and named by a chronically ill woman and it is pretty accurate in my own experience.  For the first time in my life, after putting myself through law school, studying for and passing the bar exam, and then working more than full time in a stressful and demanding career in addition to a lifetime of “adulting” meaning maintaining a household and nurturing various parasitic males I no longer have anywhere near the energy I once had and can now barely get anything done, regardless of urgency or import.  It’s not a matter of how important anything is anymore, nor how badly I need to or want to do it.  I am not in control of that now and it is debilitating and terrifying.

Healthy people have no idea that’s even possible and they often refuse to believe it.  And that’s an example of ableism, or discrimination in policy and practice against disabled people and in favor of healthy people.  Young people seem acutely aware of the concept of spoons, chronic illness and ableism while older people seem to have not a clue; the implications of that are terrifying but I will leave that for another day.

I recently attempted to describe my own limitations to my mother, and even though as a nurse who claims to have rigorously studied the issues and thinks she knows everything there is to know about health, wellness and chronic illness (LOL) she had never even heard of “spoons” or spoon theory.  Considering that that information is literally everywhere if one only cares to look, her research skills get an F.  Her practical knowledge gets an F.  Empathy F.  Effort F.  Fucks given on behalf of the chronically ill F.  Fucks given about me and my new normal F.  Decent human being D+.  Maybe.  Maybe there’s hope, I think to myself, and at least a D+ is better than an F in that department, although the D+ is likely generous.  It’s a pretty important department and I like to think it matters but maybe it really doesn’t.  Maybe there is just no way that healthy people will ever understand or care what it’s like to be seriously chronically ill no matter how decent they are but I decide to try.

Antiauthoritarianism: Illustration via Juxtaposition.

If the above vid is not the perfect illustration of concept I don’t know what is.  This is the most recent YouTube upload by Royalty Soaps, what used to be a one-woman soapmaking business that has grown over several years into something else.  The backstory here seems to be that at some point, the eldest yet still teenaged daughter in some freakishly large Quiverfull-type family consisting of a mother, a father and a dozen(ish) Irish twins* started making soap and with the help and support of that family has become very successful and has now delegated some of her substantial duties to others.

As described in this vid, this woman’s business recently experienced an unexpected and frightening setback and she relied heavily on her family to correct the situation and save the day, which they did in spades.  They also had the time, energy, material resources and desire to throw her an Insta-worthy backyard 25th birthday party in the midst of this family project.  The party was beautiful and the familial love and care given and received there, as documented in this vid…well watch it for yourself and see what you think.  For me, the experience of watching this was somewhat complicated.  I enjoyed it, was moved by it but it made me deeply uncomfortable and thinky…and hungry for salad, cake and sun tea.

What was so deeply disturbing to me about this footage was the backdrop against which it was shot and I’m not referring to her (albeit somewhat disturbing) home state of Texas, or a photo prop.  The backdrop here, as it is most everywhere, is the social context of capitalism and patriarchy and what that means is that, in order for this situation and this footage to exist, this woman has had to comply, comply, comply in order to reap what must be conditional rewards of love; affection; physical presence and caretaking; emotional care and concern; and finally, material things that, under the current system, really only money can buy.  Doesn’t it?  In her case, she has had to buy into the religious, political and social traditions of her family including the patriarchal authority of her parents, the heterosexual and mommy mandates and more in order to have what she has.  Of course, the traditions of her family mirror the traditions of her culture more or less exactly.

Luckily for her there does not seem to be any obvious conflict between her own values, conscience etc. and that of her family (or culture) but what if there was?  What would happen to her if she woke up one day with, say, environmental concerns implicating overpopulation and natalism, or economic concerns implicating capitalism and the money system and the ethics of making and selling soap (or doing anything) for profit?  What if, God forbid, this Quiverfull (or whatever) daughter woke up one day with feminist concerns which implicate all of that plus the destablization of the patriarchal authority of her father/parents, her husband, her church and the State?

Benefits Attorneys are Professional Gaslighters. Language Itself is Gaslighting. Discuss. Or Don’t, It Really Probably Doesn’t Even Matter.

I spent my entire brief career as an attorney trying to get income- and disability-based benefits for vulnerable people.  It was a grueling and traumatizing career track that I realize now (and kind of realized at the time at different times) was based not in actually helping people by understanding their circumstances and getting people what they desperately needed, but in cruelly gaslighting them and wasting their time and energy doing “intakes” and whatnot when they could least afford the expense.  I have written here before about one potential client that was referred to me by a medical provider because he said people were threatening and following him.  Turns out, this man was quite mentally ill and was having delusions and it was left not up to his doctors (who palmed him off on me) but to me, a young attorney, to put the pieces together for him and to figure out what was really going on, but not before wasting a significant amount of his time.

Of course, even if there were people following and threatening him there is little to nothing a lawyer could’ve done about it.  I told the man to call the police if he felt threatened, and as was the policy of the nonprofit I was working for at the time, got the man’s consent to speak with the referring medical providers about his “case” when what I really wanted to do was punch the lot of them in the mouth for failing their own patient so egregiously and palming him off on me like he was garbage and I was a can.  Don’t even get me started on how much I hated that job.  I wasn’t well liked either and after 10 months was invited to leave.  To be fair, if I hadn’t needed the money myself, having just quit a perfectly good job at a for-profit law firm (which I also hated) in order to take that one, I would’ve quit my dream job at this nonprofit after a couple of weeks once I realized what really went on there, and that “case” with the elderly Spanish-speaking mentally ill man is a decent example of what a day at the office looked like there.  Here’s another:

PSA: How To Report A Threat Of Violence to Increase Chances Of Arrest, Hold & Criminal Charges (Or, The One That Maybe Didn’t Get Away).

It really bothers me that I’m sitting on all this legal knowledge, experience and skill and there’s nothing I can do with or about it.  Because of the pain and symptoms of my disease I am definitely not physically or mentally able to practice law full time anymore, but as I learned early on, to my crushing dismay, there is really no such thing as a part-time attorney.  This profession is still a bros club which means that it requires long hours and plenty of so-called face time, exactly as much as you would expect in order to squeeze most women out of most of the best positions while simultaneously providing cover, excuse and alibi under which powerful men commit adultery, avoid emasculating and squikky domestic chores, and otherwise abuse their power at women’s and everyone’s expense.  Seriously, don’t let the relatively high rate of female law graduates fool you into thinking the law is a reliably safe, lucrative or accessible field for women because it’s definitely not.  Fuck me did I learn that one the hard way.

But you know what?  I’m not dead yet and I’m still breathing and conscious and pissed off enough to write this post so I’m going to write it.  Today, my upstairs neighbor had what was apparently a psychotic break and started throwing bottles of piss and garbage into my yard and threatened my life.  I called the cops and made a report.  He was arrested and removed based on my statement and that of other witnesses (crime victims are technically just witnesses ourselves) and my property manager cleaned and disinfected my yard at my request.  The cops, firemen, first responders and the whole damn town apparently turned up to watch the show.  What they didn’t get to see was the man who threatened and assaulted me get off with a warning or with no consequences at all.  Who knows what the second act will be but the first act saw my assaulter arrested and taken to the hospital first, then presumably to jail.

I am writing this post to give a practical, technical example of proper reporting behavior/content to victims who report threatening or violent behavior, which reporting will leave the cops with little choice but to arrest, hold and charge the perpetrator with a crime.  Little choice is not no choice of course and they could still let him out/off at any time.  That’s probably exactly what will happen in the end, but I gave them as little choice as possible and increased the chances of an arrest, hold and charge the best I could.  Here’s what I did.  The short answer is, you have to answer YES to both of the following questions if you want the incident to be taken as seriously as possible at the reporting stage, hopefully ensuring that your attacker is arrested and taken to jail, that he is held there, and that he is properly charged with a crime.

American Feminism Was (Is) a Psy-Op. Western Medicine Shored up Male Power. Discuss.

This post is about American feminism specifically since that’s the brand I know the most about and the one that affects me every day of my life.  I am not talking about other “feminisms” in other places but here in my own country where, after 100 years of feminist activating, including actual and/or perceived successes American women still face the following oppressive realities of living under American men’s particular brand of patriarchy:

1.  We are removed from natural food and water sources and rely on necrophilic men to supply us and our dependents with the material necessities of life including food, water and plant-based medicine;

2.  Our land including our soil, air, water and biomass (i.e. food, pets and ourselves) have been consistently poisoned since the 1940s (that we know about) with male-made nuclear radiation where this kind of ionizing radiation is known to be dangerous and not compatible with life or health;

3.  Physical and mental “health” have been medicalized where “health problems” are synonymous with “medical problems” meaning that in America, health and Western (capitalistic patriarchal) medicine are the same thing;

4.  All institutional power remains in men’s hands with only token female representation in positions of military, economic, academic, scientific, police, media, regulatory and all relevant political and social power in every area.  This includes 100% male control over Western medicine and therefore over sick and dying bodies.

This is a partial list and a specific progression but it will do for now.

What is a psy-op?  A psy-op or psychological operation appears to be a propaganda campaign including slogans aimed at a political enemy in order to get them to activate toward and achieve state interests.  For our purposes “state” interests is interchangeable with patriarchal interests and refers to male interests and male power achieved at women’s expense while “propaganda” refers to American media including representations of so-called feminist speech.  Working backwards, we can see that once feminists (of all people!) started activating towards and achieving patriarchal goals, there was indeed a propaganda/slogan campaign that preceded it.  Also for our purposes, we can presume both causation and intent where the result of this propaganda campaign — women activating towards male interests — was completely foreseeable and besides, if men didn’t like the result of women activating towards male and against female interests men could’ve stopped or changed it at any time.  Of course they never did.

Cannabis Refugee, Esq. One Year Later. (Meta Discussion)

As my readers may’ve seen or sensed from the recent comments and content on this blog, I have become disillusioned with the CRE writing project and may decide not to continue writing about my experience as a Crohn’s patient trying to survive outside the Western medical system that was not helping me and was only making me worse.  As far as I can tell, this project has not inspired any additional writing or critical thinking on this subject, my posts have not been widely shared or inspired much interesting feedback, and this work has not opened up any additional opportunities for me in the way of writing or activism.  Of course, those were not the reasons I started this blog in the first place but they are to be considered when looking into the future of this project and whether it is in my or anyone’s best interest that it continue.

My original intent in starting this project nearly one year ago was to document my experiences as a seriously ill woman for whom conventional medical treatments were not working including the social, financial and health-related fallout of this system that seems designed to control and punish sick people while we carry the blame and shame for Western medicine’s failures and even its lies.  At times my health and financial situation have been so precarious that I actually believed (and still do believe) that I am going to die here, alone and in the middle nowhere, and I wanted the truth about what happened to me to be known or at least knowable by those who would wonder what the hell could’ve possibly happened that led to that sad and lonely end.