More Evidence of Autoimmunity? Surgery “Complications” and Delayed Healing from Medicalized Trauma

This is mommy vlogger Bonnie Hoellein.  I have written about this woman before after both she and her sister were constantly vlogging about crapping themselves in public and I wondered aloud if one or both of them suffer from autoimmune conditions, specifically inflammatory bowel disease including ulcerative colitis or the hideous, disabling disease I suffer from, Crohn’s disease.

In the last year or so, Bonnie has had at least 2 rounds of cosmetic surgeries to correct various things she didn’t like about her body.  Both times, she suffered horrific complications from the surgery including delayed healing, infections, and what her husband has described as being at “death’s door.”  Based on my research this woman’s surgical complications and delayed healing from medicalized trauma is more evidence that she probably has an undiagnosed (or even a diagnosed yet publicly undisclosed) autoimmune condition.

Whether or not she knows she is ill, this woman — like a lot of women surely — keeps putting her health and life in danger by undergoing elective surgeries.  The medical research indicates that autoimmune patients do indeed suffer from delayed and complicated wound healing:

Continue reading “More Evidence of Autoimmunity? Surgery “Complications” and Delayed Healing from Medicalized Trauma”

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The Diagnostics Racket. Ft. Scooby Doo.

This needn’t be a long post but I was just thinking about how disingenuous it is to break up bodies into “parts” and “systems” in order to diagnose what’s wrong with sick people as if it matters.  Sick is sick, and if anyone were being honest about any of this we would all admit that what sick people need, more or less universally, is marijuana and a clean, safe environment in which to convalesce and to maybe or maybe not “recover.”  Some things have no cure.  We know that.

Marijuana works for everything, for every “part” and every “system” (the body/mind as a whole IOW) and this has been known by humans for thousands of years.  Playing dumb and worse, subjecting sick humans to inherently necrophilic compartmentalization in any form in order to heal them is not going to work.  Stabbing sick people in the bone to see if they have leukemia — when we already know that marijuana is a the safe and effective treatment both for leukemia and things that mimic leukemia — is simply cruelty.  Get it?  Subjecting anyone’s allegedly loved one to a bone-stabbing for no good reason — and I just showed that there isn’t a good reason — is cruelty.  And friends and family (and doctors obvs) should be ashamed for doing this but when it comes to the diagnostic racket people seem pretty shameless.  It frankly disgusts me.

You all just want to play dumb, acting like marijuana and a clean, safe place to convalesce isn’t clearly, obviously and universally what’s needed in every case.  Your ignorance is cartoonish.  You sound exactly like Scooby Doo in my exhausted fed up and terminally inflamed brain.

Sick person: I need real medicine that works in the first place and to stop being made worse in the second.

Everyone:  RUUUUTTTTT?  Rye ron’t ret it!

Sick person: The things I need cost money and I am unable to earn money anymore because sick.

Everyone: RUUUUTTTTTT?  Rye ron’t rav renny runny!*

* Obviously I understand that not everyone has money.  But one, a lot of people have a lot more money than they are willing to admit, they just have other priorities.  Also, there is a whole conversation to be had around the fact that sick people aren’t getting what they need, and that conversation needn’t center the finances of one person or one family.  If you aren’t the one who’s sick the conversation should NEVER center on you, it’s not about you.  RUUUUTTTTT?  Yeah.

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Cannabis Refugee, Esq. One Year Later. (Meta Discussion)

As my readers may’ve seen or sensed from the recent comments and content on this blog, I have become disillusioned with the CRE writing project and may decide not to continue writing about my experience as a Crohn’s patient trying to survive outside the Western medical system that was not helping me and was only making me worse.  As far as I can tell, this project has not inspired any additional writing or critical thinking on this subject, my posts have not been widely shared or inspired much interesting feedback, and this work has not opened up any additional opportunities for me in the way of writing or activism.  Of course, those were not the reasons I started this blog in the first place but they are to be considered when looking into the future of this project and whether it is in my or anyone’s best interest that it continue.

My original intent in starting this project nearly one year ago was to document my experiences as a seriously ill woman for whom conventional medical treatments were not working including the social, financial and health-related fallout of this system that seems designed to control and punish sick people while we carry the blame and shame for Western medicine’s failures and even its lies.  At times my health and financial situation have been so precarious that I actually believed (and still do believe) that I am going to die here, alone and in the middle nowhere, and I wanted the truth about what happened to me to be known or at least knowable by those who would wonder what the hell could’ve possibly happened that led to that sad and lonely end.

Continue reading “Cannabis Refugee, Esq. One Year Later. (Meta Discussion)”

Medically Futile Care as Ritual. Part II. The Political Intent and Effect of Flogging Corpses, Framing Zombification as “Life Support” Etc. What’s Going On?

In my last post I wrote about an article published in a British medical journal that admitted that medically futile care — care that is not expected to increase a sick or dying patient’s health or prolong their life — has ritualistic intent and effect on the population at large.  I did not pay to access the full article and the abstract did not detail the ritualistic intent/effect so I was left to surmise for myself what the intent and effects are on society as a whole when Western medicine in particular flogs corpses with no reasonable chance of being revived; prolongs the dying process with aggressive and violent transplants and surgeries, resuscitation attempts and so-called “life support” including intravenous nutrition and hydration, mechanical breathing and filtration and the like; artificially delivers and maintains genetically or congenitally nonviable infants instead of letting them die naturally and so on.

I have observed previously that Western medicine attempting to treat untreatable, incurable and progressive disease is also ritualistic and does not benefit the patient except to function as a means of compliance and confession where sick people, especially sick women, are expected to confess their sins of and accept a flogging for being failed producers/consumers under capitalism and patriarchy.  Thus I would include such ineffective care under the heading of ritualistic medically futile care although the article I was responding to did not address or include that type of futility.  As a radical feminist I reject patriarchal rituals on their face and refuse to participate in them at all where and when I have a choice.  I have resisted using the capitalistic patriarchal (Western) medical doctor’s office as confessional, and refused to accept the flogging of brutal treatments that will not increase my overall quality of life or even reliably delay my death, instead choosing to treat my otherwise intractable pain and symptoms with medical cannabis.

So the existence of medically futile care as (capitalistic, patriarchal) ritual does not seem to be at issue, being freely admitted to by researchers who frame these rituals as having a positive effect on society — an effect which transcends the abuse and pain suffered by individual patients who are subjected to it but do not themselves directly benefit from it in terms of an increased quality or even quantity/length of life.  So what exactly is the specific ritualistic intent and effect on society at large of flogging corpses, creating and maintaining zombified “undead” and/or profoundly impaired patients on so-called life support, artificially reducing natural levels of infant mortality and so on?

Continue reading “Medically Futile Care as Ritual. Part II. The Political Intent and Effect of Flogging Corpses, Framing Zombification as “Life Support” Etc. What’s Going On?”

Running Through Fire With an Ostomy Bag. Homeless Without Humira. Can You Imagine?

Yet again I am contemplating and empathizing with the plight of the seriously chronically ill in the midst of an ongoing natural disaster, this time raging wildfires in Northern and Southern California.  This morning I read the story of a woman who had given birth via C-section in the city of Paradise which that very day ended up burnt to the ground.  She was still on an IV drip with a spanking-fresh surgical wound and an hours-old newborn, unable to even walk on her own, and was forced to catch a ride out of dodge with a nonmedical hospital worker to whom she decreed: if the fire overtakes this car, take my baby and run.  Gamely, the nonmedical hospital worker hung this woman’s IV bag from the rearview mirror and in just 9 short hours they had made the 20 minute drive to the next town to another hospital where, I presume, she is continuing her recovery from what is, of course, major (and probably elective) surgery and on top of that, likely major psychological trauma from both the surgery and the fire.

The home she had shared with her husband in Paradise has been reduced to its chimney as a large portion of the state continues to burn throwing hundreds of thousands of lives into prolonged chaos.  Some 10,000 homes have burned and many more people than that have been left homeless, camping out in tents in the parking lot of the local Walmart (if they are lucky enough to even have a tent) living in cars (unless theirs was lost or left behind) or renting a hotel room if they can locate, access and afford one — every room within 100 miles is currently occupied by displaced fire victims and other evacuees.

As a climate refugee myself, before I became a cannabis refugee, I was left homeless after losing my apartment in Hurricane Sandy and I can vividly imagine and feel these evacuees’ pain, stress and grief as they attempt to survive the “aftermath” of an ongoing regional disaster where all has been lost, damaged or destroyed, and that includes all infrastructure, including medical infrastructure.  While the experience of being a climate (or other) refugee in the best of circumstances is daunting, traumatizing and horrific, what are seriously ill people expected to do on top of everything else when they are also tied to the Western medical system either temporarily or for life because they have submitted to alterations/interventions like surgeries, ostomies, picc lines and the like, but where medical goods and services (including ostomy supplies and even intravenous nutrition) become unavailable due to an ongoing natural disaster?  What of those who are dependent on Big Pharma drugs to manage their symptoms or who are addicted to prescription painkillers and psych meds but who, due to circumstances beyond their control, are unable to refill their prescriptions and start to experience dangerous and even life-threatening disease relapses and clinical withdrawal?

Continue reading “Running Through Fire With an Ostomy Bag. Homeless Without Humira. Can You Imagine?”

Aaaaaannnndddddd…We’re Back to Grateful. I Literally Forgot What a Full-Blown Crohn’s Flare Was Like.

So for the past week or so I have been in a full-blown Crohn’s flare.  Being sick as hell all the time anyway, even when my GI symptoms are relatively minimal (meaning, minimal for me as a person with a chronic and debilitating autoimmune and GI disease) I guess I had forgotten how bad things can actually get!  Despite having recently worsening symptoms like crippling fatigue, arthritis in my fingers, toes, shoulders, hips and spine, dizziness and trouble walking, my GI symptoms have been at a blessed minimum lately, consisting merely of having to ruthlessly police my own diet and avoiding most foods available in the supermarket or anywhere; waking up nauseated every single day and having to lay (well, writhe around) in bed for an hour every morning trying to fart (apparently extreme bloating makes one nauseated?  Who knew!); being hit randomly throughout the day with stabbing abdominal pains, gas and bloating, “heartburn” which is really esophageal spasms that feel more like a cardiac event than a gastrointestinal one, pangs of nausea and other distressing sensations, and being glad I live alone so I can accomplish this daily ritual/grind in peace.

Other than that (!!) I felt relatively okay until about 10 days ago when the dreaded intestinal gurgling began.  As far as I can tell the gurgling starts as I become more and more inflamed and less and less able to control my symptoms — is it masticated food trying to bypass an obstruction?  Because that’s what it seems like to me.  In short order I was in a full-blown flare in which my abdomen feels, looks and is like a bloated whiskey barrel overstuffed with boggy loaves of bread, broken glass, 190 proof alcohol, and poison.  The broken glass, alcohol and poison are self-explanatory (severe sharp/gnawing/grinding pain, burning, smothering malaise).  The boggy loaves of bread are my inflamed intestines and that’s exactly what it feels like — for instance, instead of moving and/or bending easily at the waist, bending over becomes grueling and distressing and literally feels like I am working against a waterlogged loaf of Wonder bread where my appendix and terminal ileum should be (abdominal right lower quadrant).  There’s another loaf where my ascending colon should be and so on.  If I drop something on the floor whilst in this sorry state it better be something I won’t be needing for awhile because I literally cannot bend over (or reach!) to pick it up again.

Continue reading “Aaaaaannnndddddd…We’re Back to Grateful. I Literally Forgot What a Full-Blown Crohn’s Flare Was Like.”

Yes Pot Works. Yes It’s Been Around a Long Time. Enough with the Red Herrings. Also, “Education” of the Oppressor is Never A Solution to Political Oppression.

I wouldn’t call these vids a waste of time exactly, if you need something educational to listen to while doing the dishes or commuting or whatever.  But for those of us who already are educated on this issue, and for those of us who understand that education is not, in fact, a reliable road to any kind of political revolution (because everything they do to us is deliberate, meaning they know what they are doing) this kind of material is very boring and rings very hollow.  Doesn’t it?  The assumption that education is the key to solving the problem of cannabis prohibition and restriction is prevalent in every pro-cannabis dialog I have ever heard, and this tells me loud and clear that most people do not in fact realize that what we are dealing with is political oppression and that they think it’s something else entirely.  And I have no idea how to remedy that.

Continue reading “Yes Pot Works. Yes It’s Been Around a Long Time. Enough with the Red Herrings. Also, “Education” of the Oppressor is Never A Solution to Political Oppression.”