Patreon Drive for August 1 Donations. Thank You for Your Support. Update Below the Fold.

patreon
Please click the Patreon image in the sidebar or use the links below to visit my Patreon page. Thank you for your support. >>>>>>>>>

Thank you to my 12 existing Patrons!  I appreciate your support.

I would never ask to be rescued from a more or less natural death.  When I came here 3 years ago to treat my serious chronic illness with medical cannabis, I really felt like I was dying, that I had no choice and that even if I “lost everything” it would not matter.  My quality of life was nonexistent and I was so extremely ill that I thought either I would die from my disease (which I believe is essentially a terminal illness, or at least that it’s terminal without treatment) or that I would heal enough to go on with my life even if it looked much differently than it had before.  3 years later, I have “lost it all” having paid out-of-pocket for out-of-state lodging and treatment which has given me profound pain relief and significant healing from the ravages of my incurable and disabling autoimmune condition, Crohn’s disease.  While I consider this to be an unlikely and hard-won personal success and am so grateful that I was able to do that for myself, I am now facing something I did not expect: figuring out how to live into the foreseeable future with an only somewhat healed and temporarily managed illness and no money, no credit, no immediate eligibility for benefits and little or no ability to earn.

Continue reading “Patreon Drive for August 1 Donations. Thank You for Your Support. Update Below the Fold.”

Patreon Drive for July 1 Donations. Thank You for Your Support. Update Below the Fold.

patreon
Please click the Patreon image in the sidebar or use the links below to visit my Patreon page. Thank you for your support. >>>>>>>>>

Thank you to my 13 existing Patrons!  I appreciate your support.

I would never ask to be rescued from a more or less natural death.  When I came here 3 years ago to treat my serious chronic illness with medical cannabis, I really felt like I was dying, that I had no choice and that even if I “lost everything” it would not matter.  My quality of life was nonexistent and I was so extremely ill that I thought either I would die from my disease (which I believe is essentially a terminal illness, or at least that it’s terminal without treatment) or that I would heal enough to go on with my life even if it looked much differently than it had before.  3 years later, I have “lost it all” having paid out-of-pocket for out-of-state lodging and treatment which has given me profound pain relief and significant healing from the ravages of my incurable and disabling autoimmune condition, Crohn’s disease.  While I consider this to be an unlikely and hard-won personal success and am so grateful that I was able to do that for myself, I am now facing something I did not expect: figuring out how to live into the foreseeable future with an only somewhat healed and temporarily managed illness and no money, no credit, no immediate eligibility for benefits and little or no ability to earn.

This is Mama and Chili, my 2 adopted shelter cats.  Mama is the calico and Chili is her now-grown female kitten and appears to be a ragdoll mix.  They are so happy being together and the 3 of us have been blissed out for 3 years living in a modest calm and quiet living space in a beautiful rural area.  Mama and Chili are indoor/outdoor cats and get plenty of fresh air, sunshine, grass to chew on and bugs to chase.  Please help us stay together!

Continue reading “Patreon Drive for July 1 Donations. Thank You for Your Support. Update Below the Fold.”

Swallowing “Professional Middle Class” Hook, Line & Sinker. Academic Tenure Can Be Revoked Due to Illness (and Other Reasons).

This is Ruby.  Ruby is a mommy vlogger with over a million subscribers, is the sister of Bonnie and Ellie, and like her sisters is also a generational member of the LDS religious cult (Latter Day Saints, aka Mormons).  Ruby has a family including 6 young children and a husband.  Ruby and her husband have spent their entire relationship getting Mr. Ruby educated with a Master’s and a Ph.D and Mr. Ruby has used his education to get a teaching job which he has held for the last several years.  Mr. Ruby just found out he got tenure which means he can never be fired* from his job.  According to Ruby’s understanding of the situation, this means that they will always have money and therefore that they will always have security.  That they will always have necessary and discretionary income.  That they will always have a home.  Ruby is so, so, so very happy about that.

Judging by her life and lifestyle as a married middle class woman with children, Ruby has clearly bought into one myth, the myth of the middle class mother and wife who thinks that having a successful husband is a guarantee of current and future security.  She assumes that he will never leave, or decide to spend his money recklessly or on other people or in ways of which Ruby herself does not approve.  It is possible that their shared religion and community as LDS may function as a social glue that holds this couple together and keeps Mr. Ruby’s money in the shared account (and his dick in his pants) so it’s possible that Ruby is a bit smarter than most women who do the same thing but who don’t have anything holding their marriage together besides “attraction” or “love” or shared interests or shared parenting or other such fleeting things.  And to be fair, Ruby might be right about Mr. Ruby and Mr. Ruby might be the greatest guy or even the greatest person in the entire world and their plan to be secure for the rest of their life based on his job might be reasonable under certain circumstances.

But how realistic is it really, when the future security they have both worked so hard for is completely dependent on Mr. Ruby’s physical and mental ability to work, especially now where we are experiencing the collapse of our ecosystem and where so many people are becoming seriously chronically ill?  What if Mr. Ruby already has a latent condition of which he is not yet aware including the increasing likelihood that any of us has a confounding autoimmune disease that will be resistant to treatment, both incurable and progressive, and where the conventional treatments are known to make autoimmune patients worse and even more disabled than they were before?

*Tenure can be revoked y’all.  And not just because of disability either.

Continue reading “Swallowing “Professional Middle Class” Hook, Line & Sinker. Academic Tenure Can Be Revoked Due to Illness (and Other Reasons).”

The Colostrum Culmination. Because I’m Actually Not Worth It.

In the last 3+ years in my search for relief and healing of my Crohn’s disease with medical cannabis, I have also tried more supplements than I can probably remember or count.  In addition to possibly every cannabis product and delivery method available, I have tried various multivitamins, minerals, digestive enzymes and other products including chaga, shilajit, Himalayan pink salt, blackstrap molasses, powdered fruit and vegetable juice capsules, colloidal silver, melatonin, bee pollen, Manuka honey, lecithin, probiotics, and fermented organic foods including miso, raw Kombucha, raw apple cider vinegar and raw saeurkraut and fermented vegetables, all at significant out-of-pocket cost which have left me destitute.  I didn’t care if I spent every last dime I had on finding an alternative treatment that worked because as an un- and undertreated Crohn’s patient, my pain and symptoms were not responding to conventional care and the relentless agony of my raging autoimmune and digestive disease had become unbearable.  I was willing to try anything and everything if I thought it held any promise to heal me, or so I thought.

For 3 years of trial and error on medical cannabis and supplements, and 2 years of conventional treatment before that, I had been willing to try anything, absolutely anything if I thought there was any chance that I would finally “get better” and be able to return to my previous life, or to any life at all and this appears to be common amongst Crohn’s patients specifically.  I once read about a Crohn’s sufferer who was willing to try a “fecal transplant” but he misunderstood the directions (and the concept) and ended up drinking the infusion instead of inserting it rectally and I knew exactly how he felt — Crohn’s patients will literally drink someone else’s shit if they think they might find relief from their suffering.  That’s how unimaginably hellish Crohn’s disease is. In my own case, my last attempt at conventional treatment was to agree to take immunity-decimating infusions that would’ve left me susceptible to opportunistic infections, cancer and death (my attempt was thwarted when the doctors prescribing the treatment fired me once I was accepted for Medicaid which was probably a good thing and left me no choice but to move across the country to seek healing with medical cannabis).

The last and final supplement I tried was colostrum and I ordered it from Amazon without even fully knowing what it was, just that it was a “natural” supplement that some people on the internet said had helped them with their ailments and that the relief was immediate and substantial.  But once I started using the colostrum and the more I researched it and figured out what it really was, something inside of me said “enough.”

Continue reading “The Colostrum Culmination. Because I’m Actually Not Worth It.”

Patreon Drive for June 1 Donations. Thank You for Your Support.

patreon
Please click the Patreon image in the sidebar or use the links below to visit my Patreon page. Thank you for your support. >>>>>>>>>

Thank you to my 10 existing Patrons!  I appreciate your support.

I would never ask to be rescued from a more or less natural death.  When I came here 3 years ago to treat my serious chronic illness with medical cannabis, I really felt like I was dying, that I had no choice and that even if I “lost everything” it would not matter.  My quality of life was nonexistent and I was so extremely ill that I thought either I would die from my disease (which I believe is essentially a terminal illness, or at least that it’s terminal without treatment) or that I would heal enough to go on with my life even if it looked much differently than it had before.  3 years later, I have “lost it all” having paid out-of-pocket for out-of-state lodging and treatment which has given me profound pain relief and significant healing from the ravages of my incurable and disabling autoimmune condition, Crohn’s disease.  While I consider this to be an unlikely and hard-won personal success and am so grateful that I was able to do that for myself, I am now facing something I did not expect: figuring out how to live into the foreseeable future with an only somewhat healed and temporarily managed illness and no money, no credit, no eligibility for benefits and little or no ability to earn.

This is Mama and Chili, my 2 adopted shelter cats.  Mama is the calico and Chili is her now-grown female kitten and appears to be a ragdoll mix.  They are so happy being together and the 3 of us have been blissed out for 3 years living in a modest calm and quiet living space in a beautiful rural area.  Mama and Chili are indoor/outdoor cats and get plenty of fresh air, sunshine, grass to chew on and bugs to chase.  Please help us stay together!

Continue reading “Patreon Drive for June 1 Donations. Thank You for Your Support.”

Yes Pot Works. Yes It’s Been Around a Long Time. Enough with the Red Herrings. Also, “Education” of the Oppressor is Never A Solution to Political Oppression.

I wouldn’t call these vids a waste of time exactly, if you need something educational to listen to while doing the dishes or commuting or whatever.  But for those of us who already are educated on this issue, and for those of us who understand that education is not, in fact, a reliable road to any kind of political revolution (because everything they do to us is deliberate, meaning they know what they are doing) this kind of material is very boring and rings very hollow.  Doesn’t it?  The assumption that education is the key to solving the problem of cannabis prohibition and restriction is prevalent in every pro-cannabis dialog I have ever heard, and this tells me loud and clear that most people do not in fact realize that what we are dealing with is political oppression and that they think it’s something else entirely.  And I have no idea how to remedy that.

Continue reading “Yes Pot Works. Yes It’s Been Around a Long Time. Enough with the Red Herrings. Also, “Education” of the Oppressor is Never A Solution to Political Oppression.”

“Functional Medicine” for Autoimmune Disease. More Gaslighting About the Sustainability of Alternative Treatment.

This video proposing and explaining alternative treatment for autoimmune disease using so-called “functional medicine” was somewhat interesting and gave me a bit of perspective into my own illness including what situations I should avoid in the future if I have any hope of maintaining my new-found relative health.  From a so-called functional medicine perspective, which is explained in this introductory video, it seems as if my extremely toxic upbringing by a sadistic, misogynistic Western medical doctor and nurse, as if there is any other kind, probably contributed to my serious chronic illness where trauma and abuse probably rewires the mind and body in ways that are disease-producing and very difficult to overcome under the brutal conditions of capitalism and patriarchy.

Continue reading ““Functional Medicine” for Autoimmune Disease. More Gaslighting About the Sustainability of Alternative Treatment.”

Please Stay off the Astroturf! Do Corporate Crohn’s and Cannabis Blogs Bury Independent Media?

When I was first creating and launching this project, I researched what was already out there with regard to Crohn’s and cannabis blogs and I found that there are easily hundreds of thousands of each and that they are heavily corporate sponsored.  Big Pharma sponsors (or creates) Crohn’s and other disease and “health” related blogs in order to push their corporate propaganda, in this case, the propaganda that Big Pharma voodoo is effective and easily, completely and permanently treats Crohn’s disease.  But patients know better, and if you want to hear their voices you have to dig pretty deep, beyond the heavily promoted fake astroturf and down to the grassroots — grassroots meaning the voice of the truly independent media, regular people who are telling the truth about their experiences because they have no incentive to lie.

These “real” Crohn’s patient stories are only found on people’s independent personal channels, blogs and vlogs and are not sponsored and are not part of a larger “project” on Crohn’s disease, IBD, healthcare or alternative healthcare, or the like.  The Crohn’s project channels are tricky because they seem to be hosting the stories of “real patients” (TM) but one cannot help but notice that they speak exclusively positively about their disease, their conventional treatments and their lives as sick people and reliably downplay the negatives, such as framing iatrogenic illnesses and injuries caused by the treatments themselves as “hiccups” and the various surgeries, procedures and complications they have anyway despite their allegedly effective conventional treatment as just #crohnslife and you will find those kinds of stories on YouTube channels with names like: Living with Crohn’s Disease.  Crohn’s and Colitis UK.  Real Life Stories.  Life with IBD.  Avoid those and anything similar to those like the corporate-sponsored astroturf they are.

Continue reading “Please Stay off the Astroturf! Do Corporate Crohn’s and Cannabis Blogs Bury Independent Media?”

My Correspondence with Christian Scientists.

Awhile ago as I was wracking my brain trying to figure a way out of this mess, I realized that I needed a strong ally that would respect my desire to avoid capitalistic patriarchal medicine.  The utter contempt and terror I feel towards all medicine and all doctors by now, having failed me and my loved ones so completely, means that I want and need to avoid Western medicine at any and all costs, but where except the hospital or jail can I reasonably expect to end up once I am unable to control my affect or behavior due to the intractable pain and disabling symptoms of my disease?  For lack of a better term, as a chronically ill person with an incurable and progressive disease, but one that Western medicine has a vested interest in pretending they are able to treat, I need an “underground railroad”* to rescue me from doctors, nurses, and Western medicine, and I will need help to keep running from them for the rest of my life up to, including and after I become too sick to run.  I need an organized, well-funded and politically-minded group of people who will not let this happen to me.  And that made me think of the Christian Scientists.

*I understand that my use of the term and concept “underground railroad” is culturally appropriating and that the term refers to a specific historical context, time and place.  However, one of the things oppressed people and particularly oppressed (meaning all) women have always needed was help escaping patriarchal medicine including medicalized abuse, medical experimentation and torture which is exactly what I am talking about in the context of “treating” an incurable progressive disease that does not respond to conventional treatment and mine didn’t.  If someone knows of a better term or concept for what I am expressing here, I hope they will share it.

Continue reading “My Correspondence with Christian Scientists.”

Patreon Drive for May 1 Donations. Thank You for Your Support.

patreon
Please click the Patreon image in the sidebar or use the links below to visit my Patreon page. Thank you for your support. >>>>>>>>>

Thank you to my 4 existing Patrons!  I appreciate your support.

I would never ask to be rescued from a more or less natural death.  When I came here 3 years ago to treat my serious chronic illness with medical cannabis, I really felt like I was dying, that I had no choice and that even if I “lost everything” it would not matter.  My quality of life was nonexistent and I was so extremely ill that I thought either I would die from my disease (which I believe is essentially a terminal illness, or at least that it’s terminal without treatment) or that I would heal enough to go on with my life even if it looked much differently than it had before.  3 years later, I have “lost it all” having paid out-of-pocket for out-of-state lodging and treatment which has given me profound pain relief and significant healing from the ravages of my incurable and disabling autoimmune condition, Crohn’s disease.  While I consider this to be an unlikely and hard-won personal success and am so grateful that I was able to do that for myself, I am now facing something I did not expect: figuring out how to live into the foreseeable future with an only somewhat healed and temporarily managed illness and no money, no credit, no eligibility for benefits and little or no ability to earn.

 

This is Mama and Chili, my 2 adopted shelter cats.  Mama is the calico and Chili is her now-grown female kitten and appears to be a ragdoll mix.  They are so happy being together and the 3 of us have been blissed out for 3 years living in a modest calm and quiet living space in a beautiful rural area.  Mama and Chili are indoor/outdoor cats and get plenty of fresh air, sunshine, grass to chew on and bugs to chase.  Please help us stay together!

Continue reading “Patreon Drive for May 1 Donations. Thank You for Your Support.”

Another 4/20 Post. The Literal Insanity of the “Alternative Treatment” Dilemma. Or, Too Sane to Ride the Crazy Train, But Buying a Ticket Anyway.

This post was inspired by a comment left by Nat.

It took me a good year and a half before I figured out a cannabis and diet and nutritional protocol that worked for me to treat the debilitating symptoms and pain of my Crohn’s disease.  After an entire year spent trying various cannabis products and finding profound pain relief and significant healing of my gut, I next started a regimen of top-quality supplements and 100% organic and fermented organic foods.  After an additional 6 months on the new diet, combined with continued cannabis use, finally I started feeling noticeably better.  Against considerable odds, I had managed to heal my gut well enough to process and absorb nutrients from food, and I had added a quality multivitamin, digestive enzyme and whole nutritious organic and non-GMO foods to provide those nutrients and it worked.

After being out-of-state treating with medical cannabis and organic and fermented organic foods for a year and a half, and having nowhere else to go and no way to get there anyway as I was still too weak to travel, I felt I had the energy to try to “make it” in my new home state.  For a year and a half after that I was able to continue paying for out-of-state housing and medical treatments by working intermittently on my small business and by maxing out my credit and liquidating my modest assets but now everything is gone; by itself, my ability to work intermittently will not be good enough to sustain my health, my home or my life.  Not only am I broke and my credit destroyed, my financial documents are a shambles and will be so indefinitely due to my inability to reliably maintain the books of my small business putting need-based benefits out of reach.  The 3-year gap in my medical records beginning when I abandoned Western medicine and sought alternative treatment with medical cannabis means I am ineligible for disability-based benefits too.  While I may be able to fix some of this with a bankruptcy or other action and start over eventually it will be some time before I can even apply for a rental property let alone afford to pay for one in a cannabis legal state or anywhere — I have truly lost it all trying to finance my journey to heal myself with medical cannabis.

I need somewhere to rest, relax and recover for at least a year while I clean up this mess and I need to do it in a cannabis legal state so that I can continue my treatment.  That is what I need if I am going to remain relatively healthy, pain-free and to repair the damage all of this has caused to my finances and to my life and obviously doing so would be in my best interests.  And — notice that’s an and, not a but, that’s important —  there is likely no way I am going to be able to do that.  I am in a cannabis legal state now, and I have figured out a way to heal from and live with Crohn’s disease, but after 3 years I simply cannot afford to stay.

And at the same time I also cannot afford to leave a cannabis legal state with this serious incurable and conventionally untreatable medical condition and doing so would in fact be pure insanity.  Everyone I tell about this says “you can’t leave, you need your medicine!” and of course they are right.  Without access to medical cannabis, I will lose the hard-won gains I have made in my health and well-being — gains which have cost me everything to achieve and maintain even for this short while — only to plummet once again down the Crohn’s-hole of excruciating and intractable physical pain, debilitating systemic effects and digestive issues including dangerous erosions, ulcers, inflammation and other partial bowel obstructions, malabsorption, dehydration and malnutrition, the escalating and aggregating side-effects and iatrogenic illnesses and injuries that come with conventional Crohn’s treatments and unavoidable psychological trauma from both the illness and the treatments themselves.  Within days of stopping my treatment I could easily land in the hospital or worse as I will be unable to control my affect or behavior while suffering from intolerable intractable pain and even though I can see this entirely foreseeable result coming from a mile away, there is nothing I will be able to do to stop it.

Continue reading “Another 4/20 Post. The Literal Insanity of the “Alternative Treatment” Dilemma. Or, Too Sane to Ride the Crazy Train, But Buying a Ticket Anyway.”

Janice Raymond Redefined “Women’s Health” in 1982. It Changed Nothing.

In her 1982 article “Medicine as Patriarchal Religion” lesbian and feminist author Janice Raymond defined — or more to the point redefined — women’s health to mean “the constant process to recreate a female environment that is Self-defined, on the boundary of an environment that has been man-made.”  See pdf file of the article here:  jraymond.  In her estimation, women’s ability to live “good lives” in an environment that included clean air, water, food and drink; adequate nutrition, light and sleep; economic independence and ability to make meaningful choices; and friendship with other women was conducive to and synonymous with women’s health.  Instead, women have been mostly forced to adapt to a woman-hating patriarchal environment comprised of the opposite, meaning environmental pollution of our air, water and food; economic deprivation, dependence and abuse; and physical, political and spiritual separation from other women.

It is from within this woman-hating context that patriarchal medicine has historically evaluated and determined “women’s health” where we have been determined to be neurotic, hypochondriac, hysterical.  Well, who wouldn’t be hysterical if systematically and chronically separated from their own people?  Who wouldn’t experience an array of troubling physical and emotional symptoms after drinking polluted water, breathing polluted air, eating polluted food and serving the same to their children and pets?  Who wouldn’t display symptoms of chronic distress — chronic distress being the definition of neurosis — when they were in fact placed in situations that create chronic distress by way of constant othering, dismissal and outright abuse?  Notably, Raymond’s definition of women’s health does not seem to exclude physical and mental disease — in my own estimation, even ill and chronically ill women could still be “healthy” or as healthy as possible under her definition so long as they were able to constantly endeavor to lead Self-defined lives outside the boundaries of chronic male abuses and notably, outside male definitions of sick people and of sick women.

36 years — nearly 2 generations — ago, Raymond published this paper in a prestigious medical journal, the Journal of Medicine and Philosophy, and thereby submitted her redefinition of female health not only the world but presumably also to the community of medical ethicists, philosophers and policy-makers who most needed to hear it and would be in the best position to implement it, but what good did it do?  We can test the impact of this work, I think, by asking the following questions: what happens to women who have constantly endeavored to “recreate a female environment that is Self-defined, on the boundary of an environment that has been man-made” and do these women have “good lives” or not and are they in good health or not?

Continue reading “Janice Raymond Redefined “Women’s Health” in 1982. It Changed Nothing.”

A Cannabis Treatment Protocol for Crohn’s Disease. What Worked for Me.

My experience treating myself with medical cannabis is that it was a feat of trial and error which was both expensive and time-consuming, but that’s probably the way it should be.  People are not carbon copies of each other and there is no reason to believe that Big Pharma poisons will affect different people the same way although that is the lie we have been told.  Similarly, people will respond differently to different cannabis strains, products and dosages and the only way to find something that you know will work for you is to try it.  I was advised in the beginning to document my treatment progression to help me figure this out in an organized way but I was too sick and didn’t have the mental, physical or emotional reserves to document anything.  The “budtenders” at the cannabis shops played a very minor supportive role by describing the most common uses and effects in alleviating different symptoms but probably their best advice was that “the nose knows.”  With regard to whole flower cannabis (bud) you are supposed to inhale the scent of the different strains and the ones that smell the best to you are the ones you should try and obviously the ones that smell offensive to you are best avoided.  Contrast that sage and benign advice with that of Big Pharma particularly in the case of Crohn’s and other autoimmune and chronic illnesses where we are advised and expected to take Big Pharma poisons that we know make us feel worse.

Continue reading “A Cannabis Treatment Protocol for Crohn’s Disease. What Worked for Me.”

Please Support My Work Via Patreon

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PLEASE CLICK THE IMAGE IN THE SIDEBAR TO VISIT MY PATREON PAGE >>>>

As I have discussed on this blog, I am a seriously chronically ill cannabis refugee and am facing financial ruin and homelessness due to the last 5 years of medical expenditures related to my diagnosis and treatment for Crohn’s disease, a crippling incurable and progressive autoimmune disease of the digestive tract.  After treating for 2 years with Western medical treatments which were not only ineffective but also making me feel worse, I left my partner, my home, my state, my profession and my previous life behind and traveled across the country to seek pain relief and healing through the use of medical cannabis.  Thankfully, I have found significant pain relief and some amount of healing from my disease far beyond what conventional treatments had to offer and I am so grateful to have been able to do that for myself.  Unfortunately, after more than 3 years of paying out-of-pocket for out of state lodging and cannabis treatments, at this time, I have nearly reached the end of my personal resources to deal with this issue.  Due to forces beyond my control, I am not currently eligible for disability- or need-based benefits despite my unfortunate diagnosis, significant disability, negative prognosis and financial need.

Continue reading “Please Support My Work Via Patreon”

How Can a “Tummy Ache” Be So Disabling? Sh*t Friends and Family Members Say to Crohn’s Patients. Part V. The Response.

In Part I of this series, I described the mind- and body-shattering symptoms of Crohn’s disease, a crippling autoimmune disorder of the digestive tract that also causes systemic effects like joint pain, skin eruptions and fevers.  In Part II, I describe the horror of Crohn’s treatment which apparently one has to actually experience in order to understand or empathize with.  In Part III I described my escape from the Western medical industry — after 2 years of suffering with only more suffering to look forward to, and no relief in sight, I packed one suitcase and made a reservation at a vacation rental property in a cannabis-friendly state where I had planned to stay for 2 months and heal myself with medical cannabis.  In Part IV I described my treatment successes as well as the fallout and negative consequences of my decision to leave my partner, my home, my state, my profession, and the Western medical industry behind.  From there, I will let the reader surmise what would have been an appropriate response from friends and family and hope that they are able to provide that considered, appropriate response if one of their own friends or family members fall ill, and to understand that they themselves are unlikely to receive the same considered response under the same conditions and to be prepared.  Being let down by the very people who are supposed to be there for you is a devastating blow.

In this Part V I will describe the actual responses I have received from friends and family regarding my situation which have been so inappropriate, unhelpful and physically and mentally draining that I have had no choice but to cut off all contact with almost everyone I know.

Continue reading “How Can a “Tummy Ache” Be So Disabling? Sh*t Friends and Family Members Say to Crohn’s Patients. Part V. The Response.”