A Note to the Turmeric and Yoga Crowd. tl;dr. You Aren’t That Sick.

Let me preface this note by saying that I was able to somewhat control my Crohn’s symptoms for 30 fucking years before I got sick.  And when I say “sick” I mean sick-sick.  The kind that is undeniably disabling, mostly doesn’t respond to treatment and never goes away.

Because I have explored and/or experienced these things firsthand, I know all about prescription and over the counter medication including oral, topical and other traditional medications, as well as Chinese medicine; homeopathy; reflexology; chiropractic; Ayurveda; herbal remedies and tonics; restrictive diets and enteral feeds; probiotics and fermented foods; vitamins, minerals and other supplements; trendy exercise programs and basic ones too; every form of detox, cleanse, fast and purge imaginable (and then some); acupuncture/acupressure/cupping/spooning; aromatherapy; crystal and precious metals therapies; therapeutic massage; meditation and relaxation practices; binaural beats and sound therapy; infrared therapy; Reiki and other energy work; atheist-prayer; talk therapy and otherwise working out your issues; knock-you-down-to-build-you-back-up emotional bootcamps; cutting “toxic people” and things out of your life; letting go and letting God; and thinking about something else for awhile.  Did I miss anything?  Jesus.

I’ve done it all and I’ve been doing it all for a very long time.  This is not my first day, or year, or decade with alternative therapies: I was avoiding nightshades while some of you were still eating French fries with your Happy Meals.  Think about that shit a minute.  I’ve been doing every alternative therapy imaginable since before many of you were even born.  And certainly before any of this shit became cool, or easily accessible, or at all normalized and/or mainstream. 

Potatoes (and therefore French fries) are a nightshade BTW, for anyone who doesn’t know.  And nightshades are known to be inflammatory.  I recently had an old family friend clue me into the harm nightshades can cause.  I recall trying to clue people into that in 1992 when I first learned about it but whatever right?  He figured it out 30 years later, after being in pain for decades and after having both knees replaced.  Good job dude.  Seriously, well fucking done.  These are the people, and the kinds of people, who are giving me advice.  It is, in a word, maddening.

I’ve also been keeping up with the research.  I research Crohn’s and other medical conditions weekly if not daily because I am interested in it and interested in the social commentary around it.  Where there is none, or nothing interesting, I create social commentary about it on this blog.  I know about fecal transplants and have written about it here, I know about so-called “Functional Medicine” and have written about that here, I know about stem-cell therapy (shudder) and Ketamine therapy.  I know that there is a potential gene therapy in the pipeline which I will probably never get to try.  Because these things cost money and are gatekept and are otherwise inaccessible and/or unsustainable over time.  We have been over this.  Even if these things work, there are reasons besides not knowing about it that prevent people from accessing them long term or at all.  Have you heard of?  Have you tried?  Yes.  Probably.  Seriously, stop wasting my fucking time.*

Continue reading “A Note to the Turmeric and Yoga Crowd. tl;dr. You Aren’t That Sick.”

Baby Poop Smoothies in the Age of Nuclear, Autism and Autoimmune Disease. Caveat Emptor Y’All.

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ca·ve·at emp·tor
/ˌkavēˌät ˈem(p)ˌtôr/

  1. the principle that the buyer alone is responsible for checking the quality and suitability of goods before a purchase is made.

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Baby poop smoothies.  Have people heard of this?  It’s along the same lines as fecal transplants, where both are alternative treatments used to treat and even “cure” various bowel ailments from which people are desperate, absolutely desperate for relief.  People suffering from gastrointestinal dysfunction and disease are literally willing to eat, drink and/or rectally insert other people’s shit in order to make themselves feel better, and as a Crohn’s patient myself whose serious debilitating illness was not responding to conventional care, I understand what would move anyone to attempt drastic measures to relieve the pain and disability of a crippling gastrointestinal condition which can quickly make anyone’s life unbearable.

In my own case, I submitted to suffered through 2 years’ worth of ineffective and damaging Western medical treatment for my Crohn’s; the relentless agony of un- and undertreated Crohn’s disease was hellish and terrifying, and despite accepting treatment I was only getting worse.  When I saw what was happening to me, and that the path I was on would not lead to a good place, I took my health and life into my own hands and moved across the country alone to legally treat with medical cannabis, otherwise known as marijuana.  If I hadn’t done that, and was left to suffer through more Western medical treatments (or no treatment at all) I would have likely sought relief with various alternative treatments with little or no regard for their weirdness, offensiveness, or likelihood of success.  Although I had researched fecal transplants and found that they are not indicated for small bowel Crohn’s, which I have, I am sure that eventually I would’ve come across the concept of, and been tempted to try, the Baby Poop Smoothie.

Continue reading “Baby Poop Smoothies in the Age of Nuclear, Autism and Autoimmune Disease. Caveat Emptor Y’All.”

Patreon Drive for August 1 Donations. Thank You for Your Support. Update Below the Fold.

patreon
Please click the Patreon image in the sidebar or use the links below to visit my Patreon page. Thank you for your support. >>>>>>>>>

Thank you to my 12 existing Patrons!  I appreciate your support.

I would never ask to be rescued from a more or less natural death.  When I came here 3 years ago to treat my serious chronic illness with medical cannabis, I really felt like I was dying, that I had no choice and that even if I “lost everything” it would not matter.  My quality of life was nonexistent and I was so extremely ill that I thought either I would die from my disease (which I believe is essentially a terminal illness, or at least that it’s terminal without treatment) or that I would heal enough to go on with my life even if it looked much differently than it had before.  3 years later, I have “lost it all” having paid out-of-pocket for out-of-state lodging and treatment which has given me profound pain relief and significant healing from the ravages of my incurable and disabling autoimmune condition, Crohn’s disease.  While I consider this to be an unlikely and hard-won personal success and am so grateful that I was able to do that for myself, I am now facing something I did not expect: figuring out how to live into the foreseeable future with an only somewhat healed and temporarily managed illness and no money, no credit, no immediate eligibility for benefits and little or no ability to earn.

Continue reading “Patreon Drive for August 1 Donations. Thank You for Your Support. Update Below the Fold.”

Patreon Drive for July 1 Donations. Thank You for Your Support. Update Below the Fold.

patreon
Please click the Patreon image in the sidebar or use the links below to visit my Patreon page. Thank you for your support. >>>>>>>>>

Thank you to my 13 existing Patrons!  I appreciate your support.

I would never ask to be rescued from a more or less natural death.  When I came here 3 years ago to treat my serious chronic illness with medical cannabis, I really felt like I was dying, that I had no choice and that even if I “lost everything” it would not matter.  My quality of life was nonexistent and I was so extremely ill that I thought either I would die from my disease (which I believe is essentially a terminal illness, or at least that it’s terminal without treatment) or that I would heal enough to go on with my life even if it looked much differently than it had before.  3 years later, I have “lost it all” having paid out-of-pocket for out-of-state lodging and treatment which has given me profound pain relief and significant healing from the ravages of my incurable and disabling autoimmune condition, Crohn’s disease.  While I consider this to be an unlikely and hard-won personal success and am so grateful that I was able to do that for myself, I am now facing something I did not expect: figuring out how to live into the foreseeable future with an only somewhat healed and temporarily managed illness and no money, no credit, no immediate eligibility for benefits and little or no ability to earn.

This is Mama and Chili, my 2 adopted shelter cats.  Mama is the calico and Chili is her now-grown female kitten and appears to be a ragdoll mix.  They are so happy being together and the 3 of us have been blissed out for 3 years living in a modest calm and quiet living space in a beautiful rural area.  Mama and Chili are indoor/outdoor cats and get plenty of fresh air, sunshine, grass to chew on and bugs to chase.  Please help us stay together!

Continue reading “Patreon Drive for July 1 Donations. Thank You for Your Support. Update Below the Fold.”

Swallowing “Professional Middle Class” Hook, Line & Sinker. Academic Tenure Can Be Revoked Due to Illness (and Other Reasons).

This is Ruby.  Ruby is a mommy vlogger with over a million subscribers, is the sister of Bonnie and Ellie, and like her sisters is also a generational member of the LDS religious cult (Latter Day Saints, aka Mormons).  Ruby has a family including 6 young children and a husband.  Ruby and her husband have spent their entire relationship getting Mr. Ruby educated with a Master’s and a Ph.D and Mr. Ruby has used his education to get a teaching job which he has held for the last several years.  Mr. Ruby just found out he got tenure which means he can never be fired* from his job.  According to Ruby’s understanding of the situation, this means that they will always have money and therefore that they will always have security.  That they will always have necessary and discretionary income.  That they will always have a home.  Ruby is so, so, so very happy about that.

Judging by her life and lifestyle as a married middle class woman with children, Ruby has clearly bought into one myth, the myth of the middle class mother and wife who thinks that having a successful husband is a guarantee of current and future security.  She assumes that he will never leave, or decide to spend his money recklessly or on other people or in ways of which Ruby herself does not approve.  It is possible that their shared religion and community as LDS may function as a social glue that holds this couple together and keeps Mr. Ruby’s money in the shared account (and his dick in his pants) so it’s possible that Ruby is a bit smarter than most women who do the same thing but who don’t have anything holding their marriage together besides “attraction” or “love” or shared interests or shared parenting or other such fleeting things.  And to be fair, Ruby might be right about Mr. Ruby and Mr. Ruby might be the greatest guy or even the greatest person in the entire world and their plan to be secure for the rest of their life based on his job might be reasonable under certain circumstances.

But how realistic is it really, when the future security they have both worked so hard for is completely dependent on Mr. Ruby’s physical and mental ability to work, especially now where we are experiencing the collapse of our ecosystem and where so many people are becoming seriously chronically ill?  What if Mr. Ruby already has a latent condition of which he is not yet aware including the increasing likelihood that any of us has a confounding autoimmune disease that will be resistant to treatment, both incurable and progressive, and where the conventional treatments are known to make autoimmune patients worse and even more disabled than they were before?

*Tenure can be revoked y’all.  And not just because of disability either.

Continue reading “Swallowing “Professional Middle Class” Hook, Line & Sinker. Academic Tenure Can Be Revoked Due to Illness (and Other Reasons).”

The Colostrum Culmination. Because I’m Actually Not Worth It.

In the last 3+ years in my search for relief and healing of my Crohn’s disease with medical cannabis, I have also tried more supplements than I can probably remember or count.  In addition to possibly every cannabis product and delivery method available, I have tried various multivitamins, minerals, digestive enzymes and other products including chaga, shilajit, Himalayan pink salt, blackstrap molasses, powdered fruit and vegetable juice capsules, colloidal silver, melatonin, bee pollen, Manuka honey, lecithin, probiotics, and fermented organic foods including miso, raw Kombucha, raw apple cider vinegar and raw saeurkraut and fermented vegetables, all at significant out-of-pocket cost which have left me destitute.  I didn’t care if I spent every last dime I had on finding an alternative treatment that worked because as an un- and undertreated Crohn’s patient, my pain and symptoms were not responding to conventional care and the relentless agony of my raging autoimmune and digestive disease had become unbearable.  I was willing to try anything and everything if I thought it held any promise to heal me, or so I thought.

For 3 years of trial and error on medical cannabis and supplements, and 2 years of conventional treatment before that, I had been willing to try anything, absolutely anything if I thought there was any chance that I would finally “get better” and be able to return to my previous life, or to any life at all and this appears to be common amongst Crohn’s patients specifically.  I once read about a Crohn’s sufferer who was willing to try a “fecal transplant” but he misunderstood the directions (and the concept) and ended up drinking the infusion instead of inserting it rectally and I knew exactly how he felt — Crohn’s patients will literally drink someone else’s shit if they think they might find relief from their suffering.  That’s how unimaginably hellish Crohn’s disease is. In my own case, my last attempt at conventional treatment was to agree to take immunity-decimating infusions that would’ve left me susceptible to opportunistic infections, cancer and death (my attempt was thwarted when the doctors prescribing the treatment fired me once I was accepted for Medicaid which was probably a good thing and left me no choice but to move across the country to seek healing with medical cannabis).

The last and final supplement I tried was colostrum and I ordered it from Amazon without even fully knowing what it was, just that it was a “natural” supplement that some people on the internet said had helped them with their ailments and that the relief was immediate and substantial.  But once I started using the colostrum and the more I researched it and figured out what it really was, something inside of me said “enough.”

Continue reading “The Colostrum Culmination. Because I’m Actually Not Worth It.”

Patreon Drive for June 1 Donations. Thank You for Your Support.

patreon
Please click the Patreon image in the sidebar or use the links below to visit my Patreon page. Thank you for your support. >>>>>>>>>

Thank you to my 10 existing Patrons!  I appreciate your support.

I would never ask to be rescued from a more or less natural death.  When I came here 3 years ago to treat my serious chronic illness with medical cannabis, I really felt like I was dying, that I had no choice and that even if I “lost everything” it would not matter.  My quality of life was nonexistent and I was so extremely ill that I thought either I would die from my disease (which I believe is essentially a terminal illness, or at least that it’s terminal without treatment) or that I would heal enough to go on with my life even if it looked much differently than it had before.  3 years later, I have “lost it all” having paid out-of-pocket for out-of-state lodging and treatment which has given me profound pain relief and significant healing from the ravages of my incurable and disabling autoimmune condition, Crohn’s disease.  While I consider this to be an unlikely and hard-won personal success and am so grateful that I was able to do that for myself, I am now facing something I did not expect: figuring out how to live into the foreseeable future with an only somewhat healed and temporarily managed illness and no money, no credit, no eligibility for benefits and little or no ability to earn.

This is Mama and Chili, my 2 adopted shelter cats.  Mama is the calico and Chili is her now-grown female kitten and appears to be a ragdoll mix.  They are so happy being together and the 3 of us have been blissed out for 3 years living in a modest calm and quiet living space in a beautiful rural area.  Mama and Chili are indoor/outdoor cats and get plenty of fresh air, sunshine, grass to chew on and bugs to chase.  Please help us stay together!

Continue reading “Patreon Drive for June 1 Donations. Thank You for Your Support.”