Crohn’s Disease is a Terminal Illness. Coming to Terms.

After researching this disease for going on 6 years now, I believe I have come to a rational conclusion about Crohn’s disease which is that it is not a so-called incurable progressive disease but a fatal one: based on all the evidence including anecdotal evidence from patients themselves I now believe that Crohn’s disease is a terminal illness.  I have more or less concluded that before but for some reason I hadn’t yet come to terms with it.  It’s not easy to come to terms with something like that but not because I suffer from what is almost certainly going to cause my untimely death but because everyone, and I mean absolutely everyone is lying their asses off about Crohn’s disease including how “treatable” it is, what kind of quality of life Crohn’s patients can reasonably expect, how predictably disabling it is and why, and how it’s probably going to end.

But before we get to the end it’s important to start at the beginning and admit what Crohn’s disease is at base: Crohn’s patients, including myself, have to medicate in order to eat.  And that is serious, very serious indeed.  If there is anything that is any less compatible with life than a disease that prevents the sick person from eating I can’t think of it.  A disease that prevented the sick person from breathing wouldn’t be any less compatible with life than Crohn’s is, it would just be quicker.

Continue reading “Crohn’s Disease is a Terminal Illness. Coming to Terms.”

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Underpants Gnome Logic: Treating Crohn’s Disease with Biologics. An Illustration. (Phase 1. Destroy Your Immune System. Phase 2. ?? Phase 3. Feel Better).

The Underpants Gnomes from South Park have this critical thinking thing down.  Exactly as well as anyone taking (or giving) biologics to treat autoimmune disease, anyway.  I wish there was more rampant discussion about this literally everywhere, but if there is I haven’t seen it.  The best I have seen is this post by RA Warrior (links within) addressing Big Pharma propaganda, specifically how Big Pharma lies about every facet of autoimmune disease including how disabling autoimmune diseases are, how effective the treatments are (necessarily including a cost-benefit analysis considering the iatrogenic illnesses and injuries inherent to Big Pharma treatments including biologic treatment) and how these diseases progress.

In fact, autoimmune patients know too well that the reality of living with an incurable, untreatable and progressive disease — and autoimmune patients often live with more than one — exists in stark contrast to the messages in these propaganda campaigns: these diseases are often extremely disabling and cause systemic (not merely localized) effects; the symptoms including pain and disability are NOT treatable, where they do not respond, do not respond well, or do not respond for long to conventional treatments including biologics; and autoimmune diseases are progressive where you will be lucky to just stay the same and not get worse.  None of this is consistent with the claims that autoimmune patients can “get their lives back” with any Big Pharma treatment, let alone a treatment that destroys your immune system like so-called biologics do.

Continue reading “Underpants Gnome Logic: Treating Crohn’s Disease with Biologics. An Illustration. (Phase 1. Destroy Your Immune System. Phase 2. ?? Phase 3. Feel Better).”