How Can a “Tummy Ache” Be So Disabling? Sh*t Friends and Family Members Say to Crohn’s Patients. Part IV. The Fallout.

In Part I of this series, I described the mind- and body-shattering symptoms of Crohn’s disease, a crippling autoimmune disorder of the digestive tract that also causes systemic effects like joint pain, skin eruptions and fevers.  In Part II, I describe the horror of Crohn’s treatment which apparently one has to actually experience in order to understand or empathize with.  In Part III I described my escape from the Western medical industry — after 2 years of suffering with only more suffering to look forward to, and no relief in sight, I packed one suitcase and made a reservation at a vacation rental property in a cannabis-friendly state where I had planned to stay for 2 months and heal myself with medical cannabis.  3 years later, I am still here and facing a terrifying and uncertain future as a seriously chronically ill cannabis refugee.  In these parts, I hope to show how desperate and hopeless a situation I was (and still am) in as a seriously chronically ill person who was not responding to conventional treatment.  From there, I will let the reader surmise what would have been an appropriate response from friends and family and hope that they are able to provide that considered, appropriate response if one of their own friends or family members fall ill, and to understand that they themselves are unlikely to receive the same considered response under the same conditions and to be prepared.  Being let down by the very people who are supposed to be there for you is a devastating blow.

In this Part IV I will describe the fallout of my decision to leave my partner, my home, my state, my profession, and the Western medical industry behind.

Continue reading “How Can a “Tummy Ache” Be So Disabling? Sh*t Friends and Family Members Say to Crohn’s Patients. Part IV. The Fallout.”

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