Advertising vs. Reality. Crohn’s Drug Commercials are Big Pharma Propaganda, People! It’s Not Real!

Big Mac (Real vs. Advertised)
It’s been awhile since I ate a fast food hamburger, but as I recall, it was even flatter, (somehow) both wetter and drier, and even more repulsively englobulated than the one on the right.  Englobulated, it’s a real word because I say it is!  Because everything anyone ever says about anything has to be true and people (and multi-billion dollar for-profit corporations) never make shit up to create a mental picture or steer the conversation and they definitely never lie.

Thank you RA Warrior for addressing the vast discrepancy between depictions of patient suffering in Big Pharma advertisements and what actual real patients actually experience in real life with their diseases and when taking Big Pharma drugs to treat our serious chronic illnesses.  RA Warrior blogs about rheumatoid arthritis which is an autoimmune disease like Crohn’s is: both are systemic autoimmune diseases that cause body-wide inflammation and symptoms including organ and eye damage, and RA causes particularly notable joint damage while Crohn’s causes particularly notable gastrointestinal damage.  Notice I said damage, not just “symptoms.”

While RA sufferers are progressively crippled from damage to and deterioration of the large and small joints in the body, and have other systemic issues as well like organ and eye damage and just feeling like crap all the time from head to toe, because systemic, Crohn’s patients are progressively crippled from damage to the GI tract including ulcers and erosions, fistulas, adhesions, perforations, and partial and total obstructions and have systemic effects on organs and eyes and feel like crap everywhere all the time too.  Yay!  And while most patients eventually figure out from painful, exhausting and crazy-making experience that the most prevalent (or only) cultural conversation about their disease isn’t true, most healthy people seem to have no idea and never learn what these diseases are really like, how much havoc they wreak on the body as a whole including organs and joints, and that they are both incurable and progressive.  That means that chronic, incurable and progressive diseases like RA and Crohn’s never get better and they only get worse despite the fantasy of effortless healing and full, glorious recovery being pushed by the global Big Pharma propaganda campaign hawking expensive and gravely dangerous poisons to unsuspecting and desperate patients and their families.

Continue reading “Advertising vs. Reality. Crohn’s Drug Commercials are Big Pharma Propaganda, People! It’s Not Real!”

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Building Empathy for Crohn’s Sufferers. When “Good Days” Aren’t that Good and “Bad Days” Are Awful. Yes This is the Same Person.

As I have mentioned here before, Crohn’s patients talk openly amongst themselves about the hideous realities of Crohn’s disease but these things are mostly not shared outside Crohn’s communities.  Please watch this video in which a Crohn’s sufferer sums up the heinous reality of living with Crohn’s including extremely prevalent “suicidal ideation” which is completely and utterly taboo in some cultures including American culture for whatever reason.  Listen to the medical and bodily horrors this woman has experienced, the shared horrors many Crohn’s patients suffer or at least can relate to, and assuming they have been blessed with the gift of imagination can probably imagine they themselves may have to face in the future as a result of their shared incurable, largely untreatable, progressive disease.  The Crohn’s experience is literally a bloody horror show nearly beggaring belief — can you blame them for only wanting to tell the truth to other people who are going through the same things?  This woman has a severe manifestation of Crohn’s called Fistulizing Crohn’s and after struggling and resisting for years recently submitted to an ostomy surgery and will have an ostomy bag for the rest of her life.

Continue reading “Building Empathy for Crohn’s Sufferers. When “Good Days” Aren’t that Good and “Bad Days” Are Awful. Yes This is the Same Person.”