How to Make Your Crohn’s Worse for $10 a Week

 

For obvious reasons these extreme budget food haul videos are very popular, where people who live in BFE rural America where a gallon of milk is $1 manage to eke out a sustenance diet on almost no money.  I’ve lived on these extreme budget diets myself for many years, where “beans and torts” was a staple and I could almost never afford a $5 block of cheese but when I could, mmmm, cheese.  What a treat!

These days of course, as a Crohn’s patient, there are more limitations on my diet than a lack of funds although as I am disabled and mostly unable to work, that limitation still applies too.  While I have managed to remain medically stable with no hospital visits or emergencies for almost 5 years due to “lifestyle changes” and importantly, daily marijuana use, I am still severely limited in what I can eat.  For example, through painful trial and error, and as corroborated by the medical literature as well as anecdotal evidence/reports from other patients, I have learned that I, like most Crohn’s patients, am severely lactose intolerant.  For me and many Crohn’s patients, it would be less (well, equally) painful to eat industrial solvent than most dairy products including milk, soft cheese and ice cream.

And since Lactaid and other lactose-nullifying agents don’t work for me to make dairy products tolerable, I also think it’s the proteins in dairy and not just the lactose/sugar I’m reacting to, which makes sense: it seems to be proteins in food that my immune system is attacking which makes eating most foods impossible.  To be even more specific, it seems to be genetically modified proteins — in other words, GMOs — that give me the most trouble.  But genetically modified or not, I cannot tolerate most dairy at all.

The woman in the above vid was able to get a gallon of milk for a dollar, which in most parts of the country is unheard of — it’s usually closer to $4 if not $5.  But as a Crohn’s patient who cannot tolerate most dairy, even if I could get 10 gallons of milk for a nickel I couldn’t drink it, blend it with other things or cook with it.  And of course, a lot of premade and processed foods contain dairy and so are also inedible.  Hard cheese is still on the table and I still look forward to that budget-busting block of cheese when I can afford it.  Of course, now it’s more like $12 and it has to be organic. 

Continue reading “How to Make Your Crohn’s Worse for $10 a Week”

Paleo a No-Go? GMOs, Gluten, and Crohn’s Disease. Dietary Changes That Finally Worked.

I started having noticeable issues with gastrointestinal symptoms and food intolerances early in life, if you can call diet sodas and artificial sweeteners “food.”  I was about 12 years old when NutraSweet went on the market.  It became immensely popular and was used in the diet sodas and sugar-free candies and gums all my tween-aged friends were drinking, eating and chewing.  Personally, I couldn’t stand the stuff.  It made me nauseated and bloated and made my mouth water sickeningly.  Over the years, other so-called sugar substitutes came to market and I tried them all, but every one of them made me sick.  My grandmother’s Sweet n’ Low was clearly poison and I never touched it.  As for reacting badly to actual real food, that didn’t start until later.

Continue reading “Paleo a No-Go? GMOs, Gluten, and Crohn’s Disease. Dietary Changes That Finally Worked.”

How Can a “Tummy Ache” Be So Disabling? Sh*t Friends and Family Members Say to Crohn’s Patients. Part I. The Symptoms.

In my experience as a Crohn’s patient, besides the agony of the disease and the difficulty and energy expenditure of finding effective treatments, the ignorant and hurtful things blurted out by friends and family members have perhaps been the hardest thing to deal with.  (Oh, and the looming homelessness!  But for me at least, the major financial difficulties came a bit later.)  The demented things people have said to me started early on and it caused me to perform a snap evaluation of the relationships in my life, as that was all I had the energy for, and I decided I would rather just be left alone.  5 years later, I do not regret my decision to cut ties with almost everyone who I had previously thought cared about me.  For some reason, they could not or would not grasp what I was dealing with and their constant drains on my time and energy were making me feel worse.

Continue reading “How Can a “Tummy Ache” Be So Disabling? Sh*t Friends and Family Members Say to Crohn’s Patients. Part I. The Symptoms.”

Disaffected Crohn’s Patient, Cannabis Refugee, Attorney

Firstly, I have to clearly state the following: this blog is not intended to constitute legal or medical advice.  As an attorney and an American citizen, I have a First Amendment right to free speech, and I am exercising it here.  These are my thoughts, experiences and perspectives meant for entertainment purposes only.  If you are seeking legal advice, please contact the Bar Association of your state of residence and ask for a referral for your issue.

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RUNNING AWAY FROM THE WESTERN MEDICAL “CURE”

The last day of my life was sometime in February, 2013 the day before I was first diagnosed with Crohn’s disease, a progressive and incurable automimmune disease that targets the digestive tract.  As many people with Crohn’s probably know, and as none of us is allowed to think or say out loud, your life is essentially over once you get a Crohn’s diagnosis.  If not from the disease itself then from the treatments.

Continue reading “Disaffected Crohn’s Patient, Cannabis Refugee, Attorney”