Coronavirus Outbreak + 16 Million Americans on Immunity Decimating Biologics = ??

I just spent about 10 seconds doing a back-of-the-napkin estimate on how many Americans are currently taking immunity-decimating biologics to treat autoimmune disease and came up with a figure of up to 16 million.  I got that from the estimate of up to 24 million having a diagnosed autoimmune disease and this estimate that 2/3 of diagnosed rheumatoid arthritis patients are taking biologics.  The figure of up to 16 million immunocompromised AI patients does not count those who are taking immunity-decimating chemotherapy or steroids to manage their autoimmune disease, but those have to be substantial as well, as the first line of defense is often steroids which leaves people vulnerable to infection.  For example, when I was first prescribed Prednisone to treat my Crohn’s disease, my research indicated that I should not use tampons to absorb my menstrual flow because my immune system would be lowered and having a wad of cotton festering in my vagina for 8 hours at a time could more easily become septic.

Who knows what the actual numbers are, but we can see that on any given day we have many millions of Americans and tens or hundreds of millions of people globally taking immunity-decimating medications to “treat” their autoimmune disease, leaving these people vulnerable to secondary infections like tuberculosis, hepatitis, fungal infections and more.  People with an ounce of sense, and who aren’t rendered temporarily insane/incompetent due to ongoing unmanageable pain and symptoms of disease, will rightly be concerned about the so-called side effects (iatrogenic illness and injury) of these medications including the effect (injury) of lowering their natural immunity to infectious disease.  Some of us have decided that destroying our immune systems, as dysfunctional as they may be, is not a reasonable solution to our problems, especially considering that biologics and other toxic medications often don’t even work, work well, or work for long to treat our pain and symptoms.

And for those of us who grew up amongst the 1980s AIDS epidemic, we grew up understanding how important our immune systems are and how deadly serious it is to have a compromised immune system for any reason.  We grew into and beyond puberty under what can only be described as a domestic terror campaign against “unprotected sex” in order that we not compromise our immune systems because we knew what could happen if we did: suffering from full-blown AIDS we would probably die a horrific death of secondary infections and cancers, covered in unhealing sores, starving to death from nausea and gastrointestinal effects, driven half out of our minds.  Of course, today, full-blown AIDS is not a given for many who contract HIV which virus is now manageable if not treatable.  And anyone who develops AIDS (assuming they have access to medical care) will be aggressively treated with immune bolstering treatments so as to avoid the hellish AIDS-related deaths we all saw happening in the media and which many people also experienced firsthand in our own communities, homes and lives.

Continue reading “Coronavirus Outbreak + 16 Million Americans on Immunity Decimating Biologics = ??”

Crohn’s Disease is a Terminal Illness. Coming to Terms.

After researching this disease for going on 6 years now, I believe I have come to a rational conclusion about Crohn’s disease which is that it is not a so-called incurable progressive disease but a fatal one: based on all the evidence including anecdotal evidence from patients themselves I now believe that Crohn’s disease is a terminal illness.  I have more or less concluded that before but for some reason I hadn’t yet come to terms with it.  It’s not easy to come to terms with something like that but not because I suffer from what is almost certainly going to cause my untimely death but because everyone, and I mean absolutely everyone is lying their asses off about Crohn’s disease including how “treatable” it is, what kind of quality of life Crohn’s patients can reasonably expect, how predictably disabling it is and why, and how it’s probably going to end.

But before we get to the end it’s important to start at the beginning and admit what Crohn’s disease is at base: Crohn’s patients, including myself, have to medicate in order to eat.  And that is serious, very serious indeed.  If there is anything that is any less compatible with life than a disease that prevents the sick person from eating I can’t think of it.  A disease that prevented the sick person from breathing wouldn’t be any less compatible with life than Crohn’s is, it would just be quicker.

Continue reading “Crohn’s Disease is a Terminal Illness. Coming to Terms.”