Autoimmune Women Are Supposed to Pay Doctors to Give Them AIDS. Are You Fucking Kidding Me.

Remember when “they” were saying that getting AIDS was like the worst thing ever?  I do — I am a child of the 80s afterall, and I was in 4th or 5th grade when the AIDS crisis hit and everyone was terrified of getting AIDS, children (children!) were being told to never have “unprotected” sex because of the AIDS, early on we were being told not to use public drinking fountains and to ostracize children with AIDS so as not to get AIDS ourselves.  Remember Ryan White?  I do!  I didn’t even have to Google to find his name, 40 years later I still remember his name and his story by heart, he was from my state and a few years older than I was.  He scared the shit out of everyone because he wasn’t doing anything “wrong” when he contracted AIDS like having the unprotected (or gay) sex.  That poor soul got it from a medical procedure, in his case, a blood transfusion for hemophilia.  Tragic.

Soon it became passé for anyone to trouble themselves with “how” anyone contracted AIDS — AIDS patients deserved our compassion, our respect, our acceptance of their physical and mental decline and resulting disability, regardless of how they got it.  Remember Ali Gertz?  I do.  She was a straight, affluent, white female and she got HIV and developed AIDS from a single sexual encounter with a man.  Of course, the man was bisexual and almost certainly got it from another man but by then it ostensibly didn’t matter…unless a woman gave her baby AIDS, then of course the woman was the Devil.  AIDS didn’t discriminate, AIDS was a horrible, painful, untreatable disease, a death sentence that no one deserved…except mothers who gave their babies AIDS, they deserved everything they got and more.  But deserved or not, no one was disputing that AIDS was serious, painfully serious, brutally final.

At some point “they” started saying no it’s not the AIDS specifically that’s the problem, it’s the HIV you don’t want, and that’s a virus so just use Universal Precautions and you should be fine!  Fairly recently they started saying it’s possible to “live with” HIV and never develop full-blown AIDS at all.  The message there appears to be that AIDS is actually what you don’t want afterall.  AIDS — Acquired Immuno Deficiency Syndrome — where your immune system becomes weakened, decimated and destroyed and you develop life-threatening opportunistic infections from bacteria, viruses, parasites, fungi, you get cancer (or more than one) and then need to be treated for the cancer(s), your quality of life plummets to zero and you can no longer work or play effectively, your friends and family have to care for you, even though there’s nothing long-term they can do for you, and you die painfully, skeletally, covered in sores and rashes, beyond spent, half out of your mind.  That’s the effects of the AIDS mind you — the HIV in and of itself appears to be relatively harmless except that it causes AIDS, and AIDS is still bad, very very bad, something unequivocally to be avoided.  Are we clear on that?  Good.

Enter “biologics,” the class of “treatment” — read Big Pharma poison — approved for managing autoimmune diseases like Multiple Sclerosis (MS), Rheumatoid Arthritis (RA) Crohn’s disease and more.  The so-called “side effect” of biologics — read iatrogenic illness and injury, meaning additional illness and injury caused by medical attention and treatment itself — is that biologics “change how your immune system works.”  That obfuscating bit of Big Pharma propaganda brought to you by the literal pricks at Johns Hopkins Arthritis Center.  Of course, “change” here means “destroy” and going from having a functioning immune system to not having an immune system at all is certainly a change so they aren’t technically lying but WOW, just wow.

Continue reading “Autoimmune Women Are Supposed to Pay Doctors to Give Them AIDS. Are You Fucking Kidding Me.”

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Advertising vs. Reality. Crohn’s Drug Commercials are Big Pharma Propaganda, People! It’s Not Real!

Big Mac (Real vs. Advertised)
It’s been awhile since I ate a fast food hamburger, but as I recall, it was even flatter, (somehow) both wetter and drier, and even more repulsively englobulated than the one on the right.  Englobulated, it’s a real word because I say it is!  Because everything anyone ever says about anything has to be true and people (and multi-billion dollar for-profit corporations) never make shit up to create a mental picture or steer the conversation and they definitely never lie.

Thank you RA Warrior for addressing the vast discrepancy between depictions of patient suffering in Big Pharma advertisements and what actual real patients actually experience in real life with their diseases and when taking Big Pharma drugs to treat our serious chronic illnesses.  RA Warrior blogs about rheumatoid arthritis which is an autoimmune disease like Crohn’s is: both are systemic autoimmune diseases that cause body-wide inflammation and symptoms including organ and eye damage, and RA causes particularly notable joint damage while Crohn’s causes particularly notable gastrointestinal damage.  Notice I said damage, not just “symptoms.”

While RA sufferers are progressively crippled from damage to and deterioration of the large and small joints in the body, and have other systemic issues as well like organ and eye damage and just feeling like crap all the time from head to toe, because systemic, Crohn’s patients are progressively crippled from damage to the GI tract including ulcers and erosions, fistulas, adhesions, perforations, and partial and total obstructions and have systemic effects on organs and eyes and feel like crap everywhere all the time too.  Yay!  And while most patients eventually figure out from painful, exhausting and crazy-making experience that the most prevalent (or only) cultural conversation about their disease isn’t true, most healthy people seem to have no idea and never learn what these diseases are really like, how much havoc they wreak on the body as a whole including organs and joints, and that they are both incurable and progressive.  That means that chronic, incurable and progressive diseases like RA and Crohn’s never get better and they only get worse despite the fantasy of effortless healing and full, glorious recovery being pushed by the global Big Pharma propaganda campaign hawking expensive and gravely dangerous poisons to unsuspecting and desperate patients and their families.

Continue reading “Advertising vs. Reality. Crohn’s Drug Commercials are Big Pharma Propaganda, People! It’s Not Real!”

Rubber Tramping with Cornelius Vango. Injury vs. Illness?

I have been completely fascinated with this woman who calls herself Cornelius Vango.  She is an anarchist librarian, squatter, community-builder, van dweller, adventurer and a skilled vidder, vlogger and editor and an above-the-knee amputee having apparently lost a leg in an accident as a young teenager.  For the past 3.5 years, she has lived in an off-grid squatter community called Slab City in the California desert and routinely manages extreme conditions including heat that exceeds 120F degrees in the summertime.  She also regularly bathes in, washes her clothes in and collects drinking water from an agricultural canal that runs through the Slabs and has gained considerable weight since arriving there which looks to me like systemic inflammation and has been having noticeable negative reactions to food so has gone gluten-free.

Continue reading “Rubber Tramping with Cornelius Vango. Injury vs. Illness?”

Death First! Unsurrendering to the Capitalistic Patriarchal Medical Machine and the Right to Refuse Unwanted Medical Care

Insufferable tomes explaining legal concepts are beyond the scope of this blog and frankly beyond the scope of my interest as a seriously chronically ill attorney and cannabis refugee so I will just sum up.  As was and is my right as a competent adult in this country, I decided 3 years ago to abandon the capitalistic patriarchal Western medical machine that was not helping me with my severe Crohn’s disease.  The painful invasive tests, failure to adequately treat either my symptoms or my pain and the aggregating side-effects of my medications were only causing additional medical trauma and making me feel worse.

Continue reading “Death First! Unsurrendering to the Capitalistic Patriarchal Medical Machine and the Right to Refuse Unwanted Medical Care”