The Absurdity of the Euthanasia Discussion in the Absence of Effective Medicine and Social Support for the Seriously Chronically Ill.

I cannot tell you how absurd it is to be seeking euthanasia as the final end to this awful Crohn’s journey when I’m not suicidal and I don’t want to die.  What I do want, all of which is illustrated brilliantly in this clip, is 1. effective medical treatment for my disease, or failing that, consistent access to effective pain and symptom relief, in my case medical marijuana which has been used successfully for thousands of years to ease specifically gut ailments and which use is supported in contemporary peer-reviewed medical literature particularly for Crohn’s; 2. social support with fulfilling basic tasks and the activities of daily living like shopping, cleaning, cooking and the like; and 3. to be relieved of external constraints that make existing as a chronically ill person a living fucking hell and a consistent nightmare, which constraints have nothing to do with being ill and everything to do with being an oppressed person and failed consumer/producer under capitalism and patriarchy.  Constraints like poverty.  Fear of (and actual) male violence.  Disability-based (and all) discrimination.  Things like that.

But I can’t have any of those things — effective medical treatment, social support, and freedom from oppression — because under the current system those things don’t actually exist so the easiest thing for everyone would be for me to simply disappear or to have never been born in the first place.  Failing that we have euthanasia otherwise known as assisted dying or medically assisted suicide.  Of course, poor and other unsupported “euthanasia candidates” — who likely don’t have $12,000 and the good health and social support needed to have their efforts rubber stamped/make it official — just know and experience this process as good old-fashioned suicide.  Who knows what Chris Rock really thinks about euthanasia for seriously ill and dying people but he’s not wrong to see the absurdity in it, at least under the current system.

Continue reading “The Absurdity of the Euthanasia Discussion in the Absence of Effective Medicine and Social Support for the Seriously Chronically Ill.”

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Medically Futile Care as Ritual. Part II. The Political Intent and Effect of Flogging Corpses, Framing Zombification as “Life Support” Etc. What’s Going On?

In my last post I wrote about an article published in a British medical journal that admitted that medically futile care — care that is not expected to increase a sick or dying patient’s health or prolong their life — has ritualistic intent and effect on the population at large.  I did not pay to access the full article and the abstract did not detail the ritualistic intent/effect so I was left to surmise for myself what the intent and effects are on society as a whole when Western medicine in particular flogs corpses with no reasonable chance of being revived; prolongs the dying process with aggressive and violent transplants and surgeries, resuscitation attempts and so-called “life support” including intravenous nutrition and hydration, mechanical breathing and filtration and the like; artificially delivers and maintains genetically or congenitally nonviable infants instead of letting them die naturally and so on.

I have observed previously that Western medicine attempting to treat untreatable, incurable and progressive disease is also ritualistic and does not benefit the patient except to function as a means of compliance and confession where sick people, especially sick women, are expected to confess their sins of and accept a flogging for being failed producers/consumers under capitalism and patriarchy.  Thus I would include such ineffective care under the heading of ritualistic medically futile care although the article I was responding to did not address or include that type of futility.  As a radical feminist I reject patriarchal rituals on their face and refuse to participate in them at all where and when I have a choice.  I have resisted using the capitalistic patriarchal (Western) medical doctor’s office as confessional, and refused to accept the flogging of brutal treatments that will not increase my overall quality of life or even reliably delay my death, instead choosing to treat my otherwise intractable pain and symptoms with medical cannabis.

So the existence of medically futile care as (capitalistic, patriarchal) ritual does not seem to be at issue, being freely admitted to by researchers who frame these rituals as having a positive effect on society — an effect which transcends the abuse and pain suffered by individual patients who are subjected to it but do not themselves directly benefit from it in terms of an increased quality or even quantity/length of life.  So what exactly is the specific ritualistic intent and effect on society at large of flogging corpses, creating and maintaining zombified “undead” and/or profoundly impaired patients on so-called life support, artificially reducing natural levels of infant mortality and so on?

Continue reading “Medically Futile Care as Ritual. Part II. The Political Intent and Effect of Flogging Corpses, Framing Zombification as “Life Support” Etc. What’s Going On?”

Cheryl Went the Other Way. On The Path Not Taken.

Recently I met Cheryl, a member of my adopted community here in the Middle of Nowhere, Cannabis Central, USA.  Cheryl is a bit older than I am, used to be a writer of religious texts.  Even had one published before self-publishing was a thing.  A bona fide published writer.  Writers are a weird bunch (obviously) and Cheryl is certainly weird, and was probably a bit (way) off even before she got sick — like me, Cheryl is seriously chronically ill.  I haven’t asked about her diagnoses but like many chronically ill people and especially chronically ill women, she likely has more than one illness, and it is likely that at least one of her afflictions is an autoimmune disease.  As I am learning, these illnesses, for whatever reason, tend to travel in packs.  I personally only have one that I know of — Crohn’s disease — but since moving residences 2 weeks ago and finding myself unable to get out of bed much and wracked with head-to-toe pain and crippling fatigue ever since, I am once again wondering if I have another one although I have learned through reading other Crohn’s patients’ testimonies online that Crohn’s all by itself is enough to render anyone the barely-walking dead and that is indeed how I feel.  Cheryl, on the other hand, has been buried under her particular prison for years.

Continue reading “Cheryl Went the Other Way. On The Path Not Taken.”

Crohn’s Disease and Euthanasia. Medically Assisted Suicide for Intractable Pain and Symptoms in “Nonterminal” Illness

This man, Jason (Jay) Franklin, has Hirschprung disease, a congenital birth defect in which the colon and possibly also the small intestine are not properly enervated causing bowel obstruction and inability to pass stool.  He had his first abdominal surgery at 14 days old which left him with a life-long colostomy bag and has had, in his estimation, 15-20 or more additional abdominal surgeries in his life to treat obstructions and iatrogenic illnesses from the treatments and surgeries themselves as abdominal surgery and manhandling the intestine actually cause bowel adhesions that require more surgery and so on.  At the time this footage was taken, he was on opiate pain relievers and Valium to dull the severe pain and physical and emotional distress of his disease which medications leave him cognitively impaired and he still has severe symptoms that leave him disabled from working and which prevent restful sleep.  He is also still unable to digest most food and is unable to care for himself and lives with his mother.  In this documentary, he is observed in his ordeal to apply for and be accepted to a Swiss euthanasia program called Dignitas where he intends to take his own life due to the intractable pain and incurable symptoms and progression of his disease.

While this man does not have Crohn’s disease, his condition is similar in many ways including severe intractable pain, gut issues leading to malnutrition, malabsorption and dehydration, and the incurable nature of his illness which Western medicine nevertheless does not consider terminal because there are “treatments” available when his bowel becomes obstructed, when fistulas open between his bowel and bladder causing him to urinate feces, and when he develops life threatening infections and sepsis.  Swiss euthanasia clinics appear to be the only such services available to nonterminal patients who suffer from intractable pain, and this video documents his attempts to navigate the financial and bureaucratic minefields standing between him and his chosen escape from his suffering: assisted dying, otherwise known as euthanasia or medically assisted suicide.

Continue reading “Crohn’s Disease and Euthanasia. Medically Assisted Suicide for Intractable Pain and Symptoms in “Nonterminal” Illness”