Another 4/20 Post. The Literal Insanity of the “Alternative Treatment” Dilemma. Or, Too Sane to Ride the Crazy Train, But Buying a Ticket Anyway.

This post was inspired by a comment left by Nat.

It took me a good year and a half before I figured out a cannabis and diet and nutritional protocol that worked for me to treat the debilitating symptoms and pain of my Crohn’s disease.  After an entire year spent trying various cannabis products and finding profound pain relief and significant healing of my gut, I next started a regimen of top-quality supplements and 100% organic and fermented organic foods.  After an additional 6 months on the new diet, combined with continued cannabis use, finally I started feeling noticeably better.  Against considerable odds, I had managed to heal my gut well enough to process and absorb nutrients from food, and I had added a quality multivitamin, digestive enzyme and whole nutritious organic and non-GMO foods to provide those nutrients and it worked.

After being out-of-state treating with medical cannabis and organic and fermented organic foods for a year and a half, and having nowhere else to go and no way to get there anyway as I was still too weak to travel, I felt I had the energy to try to “make it” in my new home state.  For a year and a half after that I was able to continue paying for out-of-state housing and medical treatments by working intermittently on my small business and by maxing out my credit and liquidating my modest assets but now everything is gone; by itself, my ability to work intermittently will not be good enough to sustain my health, my home or my life.  Not only am I broke and my credit destroyed, my financial documents are a shambles and will be so indefinitely due to my inability to reliably maintain the books of my small business putting need-based benefits out of reach.  The 3-year gap in my medical records beginning when I abandoned Western medicine and sought alternative treatment with medical cannabis means I am ineligible for disability-based benefits too.  While I may be able to fix some of this with a bankruptcy or other action and start over eventually it will be some time before I can even apply for a rental property let alone afford to pay for one in a cannabis legal state or anywhere — I have truly lost it all trying to finance my journey to heal myself with medical cannabis.

I need somewhere to rest, relax and recover for at least a year while I clean up this mess and I need to do it in a cannabis legal state so that I can continue my treatment.  That is what I need if I am going to remain relatively healthy, pain-free and to repair the damage all of this has caused to my finances and to my life and obviously doing so would be in my best interests.  And — notice that’s an and, not a but, that’s important —  there is likely no way I am going to be able to do that.  I am in a cannabis legal state now, and I have figured out a way to heal from and live with Crohn’s disease, but after 3 years I simply cannot afford to stay.

And at the same time I also cannot afford to leave a cannabis legal state with this serious incurable and conventionally untreatable medical condition and doing so would in fact be pure insanity.  Everyone I tell about this says “you can’t leave, you need your medicine!” and of course they are right.  Without access to medical cannabis, I will lose the hard-won gains I have made in my health and well-being — gains which have cost me everything to achieve and maintain even for this short while — only to plummet once again down the Crohn’s-hole of excruciating and intractable physical pain, debilitating systemic effects and digestive issues including dangerous erosions, ulcers, inflammation and other partial bowel obstructions, malabsorption, dehydration and malnutrition, the escalating and aggregating side-effects and iatrogenic illnesses and injuries that come with conventional Crohn’s treatments and unavoidable psychological trauma from both the illness and the treatments themselves.  Within days of stopping my treatment I could easily land in the hospital or worse as I will be unable to control my affect or behavior while suffering from intolerable intractable pain and even though I can see this entirely foreseeable result coming from a mile away, there is nothing I will be able to do to stop it.

Continue reading “Another 4/20 Post. The Literal Insanity of the “Alternative Treatment” Dilemma. Or, Too Sane to Ride the Crazy Train, But Buying a Ticket Anyway.”

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Paleo a No-Go? GMOs, Gluten, and Crohn’s Disease. Dietary Changes That Finally Worked.

I started having noticeable issues with gastrointestinal symptoms and food intolerances early in life, if you can call diet sodas and artificial sweeteners “food.”  I was about 12 years old when NutraSweet went on the market.  It became immensely popular and was used in the diet sodas and sugar-free candies and gums all my tween-aged friends were drinking, eating and chewing.  Personally, I couldn’t stand the stuff.  It made me nauseated and bloated and made my mouth water sickeningly.  Over the years, other so-called sugar substitutes came to market and I tried them all, but every one of them made me sick.  My grandmother’s Sweet n’ Low was clearly poison and I never touched it.  As for reacting badly to actual real food, that didn’t start until later.

Continue reading “Paleo a No-Go? GMOs, Gluten, and Crohn’s Disease. Dietary Changes That Finally Worked.”

How Can a “Tummy Ache” Be So Disabling? Sh*t Friends and Family Members Say to Crohn’s Patients. Part I. The Symptoms.

In my experience as a Crohn’s patient, besides the agony of the disease and the difficulty and energy expenditure of finding effective treatments, the ignorant and hurtful things blurted out by friends and family members have perhaps been the hardest thing to deal with.  (Oh, and the looming homelessness!  But for me at least, the major financial difficulties came a bit later.)  The demented things people have said to me started early on and it caused me to perform a snap evaluation of the relationships in my life, as that was all I had the energy for, and I decided I would rather just be left alone.  5 years later, I do not regret my decision to cut ties with almost everyone who I had previously thought cared about me.  For some reason, they could not or would not grasp what I was dealing with and their constant drains on my time and energy were making me feel worse.

Continue reading “How Can a “Tummy Ache” Be So Disabling? Sh*t Friends and Family Members Say to Crohn’s Patients. Part I. The Symptoms.”