The Colostrum Culmination. Because I’m Actually Not Worth It.

In the last 3+ years in my search for relief and healing of my Crohn’s disease with medical cannabis, I have also tried more supplements than I can probably remember or count.  In addition to possibly every cannabis product and delivery method available, I have tried various multivitamins, minerals, digestive enzymes and other products including chaga, shilajit, Himalayan pink salt, blackstrap molasses, powdered fruit and vegetable juice capsules, colloidal silver, melatonin, bee pollen, Manuka honey, lecithin, probiotics, and fermented organic foods including miso, raw Kombucha, raw apple cider vinegar and raw saeurkraut and fermented vegetables, all at significant out-of-pocket cost which have left me destitute.  I didn’t care if I spent every last dime I had on finding an alternative treatment that worked because as an un- and undertreated Crohn’s patient, my pain and symptoms were not responding to conventional care and the relentless agony of my raging autoimmune and digestive disease had become unbearable.  I was willing to try anything and everything if I thought it held any promise to heal me, or so I thought.

For 3 years of trial and error on medical cannabis and supplements, and 2 years of conventional treatment before that, I had been willing to try anything, absolutely anything if I thought there was any chance that I would finally “get better” and be able to return to my previous life, or to any life at all and this appears to be common amongst Crohn’s patients specifically.  I once read about a Crohn’s sufferer who was willing to try a “fecal transplant” but he misunderstood the directions (and the concept) and ended up drinking the infusion instead of inserting it rectally and I knew exactly how he felt — Crohn’s patients will literally drink someone else’s shit if they think they might find relief from their suffering.  That’s how unimaginably hellish Crohn’s disease is. In my own case, my last attempt at conventional treatment was to agree to take immunity-decimating infusions that would’ve left me susceptible to opportunistic infections, cancer and death (my attempt was thwarted when the doctors prescribing the treatment fired me once I was accepted for Medicaid which was probably a good thing and left me no choice but to move across the country to seek healing with medical cannabis).

The last and final supplement I tried was colostrum and I ordered it from Amazon without even fully knowing what it was, just that it was a “natural” supplement that some people on the internet said had helped them with their ailments and that the relief was immediate and substantial.  But once I started using the colostrum and the more I researched it and figured out what it really was, something inside of me said “enough.”

Continue reading “The Colostrum Culmination. Because I’m Actually Not Worth It.”

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Please Stay off the Astroturf! Do Corporate Crohn’s and Cannabis Blogs Bury Independent Media?

When I was first creating and launching this project, I researched what was already out there with regard to Crohn’s and cannabis blogs and I found that there are easily hundreds of thousands of each and that they are heavily corporate sponsored.  Big Pharma sponsors (or creates) Crohn’s and other disease and “health” related blogs in order to push their corporate propaganda, in this case, the propaganda that Big Pharma voodoo is effective and easily, completely and permanently treats Crohn’s disease.  But patients know better, and if you want to hear their voices you have to dig pretty deep, beyond the heavily promoted fake astroturf and down to the grassroots — grassroots meaning the voice of the truly independent media, regular people who are telling the truth about their experiences because they have no incentive to lie.

These “real” Crohn’s patient stories are only found on people’s independent personal channels, blogs and vlogs and are not sponsored and are not part of a larger “project” on Crohn’s disease, IBD, healthcare or alternative healthcare, or the like.  The Crohn’s project channels are tricky because they seem to be hosting the stories of “real patients” (TM) but one cannot help but notice that they speak exclusively positively about their disease, their conventional treatments and their lives as sick people and reliably downplay the negatives, such as framing iatrogenic illnesses and injuries caused by the treatments themselves as “hiccups” and the various surgeries, procedures and complications they have anyway despite their allegedly effective conventional treatment as just #crohnslife and you will find those kinds of stories on YouTube channels with names like: Living with Crohn’s Disease.  Crohn’s and Colitis UK.  Real Life Stories.  Life with IBD.  Avoid those and anything similar to those like the corporate-sponsored astroturf they are.

Continue reading “Please Stay off the Astroturf! Do Corporate Crohn’s and Cannabis Blogs Bury Independent Media?”