Building Empathy for Crohn’s Sufferers. When “Good Days” Aren’t that Good and “Bad Days” Are Awful. Yes This is the Same Person.

As I have mentioned here before, Crohn’s patients talk openly amongst themselves about the hideous realities of Crohn’s disease but these things are mostly not shared outside Crohn’s communities.  Please watch this video in which a Crohn’s sufferer sums up the heinous reality of living with Crohn’s including extremely prevalent “suicidal ideation” which is completely and utterly taboo in some cultures including American culture for whatever reason.  Listen to the medical and bodily horrors this woman has experienced, the shared horrors many Crohn’s patients suffer or at least can relate to, and assuming they have been blessed with the gift of imagination can probably imagine they themselves may have to face in the future as a result of their shared incurable, largely untreatable, progressive disease.  The Crohn’s experience is literally a bloody horror show nearly beggaring belief — can you blame them for only wanting to tell the truth to other people who are going through the same things?  This woman has a severe manifestation of Crohn’s called Fistulizing Crohn’s and after struggling and resisting for years recently submitted to an ostomy surgery and will have an ostomy bag for the rest of her life.

Continue reading “Building Empathy for Crohn’s Sufferers. When “Good Days” Aren’t that Good and “Bad Days” Are Awful. Yes This is the Same Person.”

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A 4/20 Post. Crohn’s Disease Origin Stories. Sponsored by Big Pharma and Cannabis Prohibition.

As I have continued to educate myself on the horrors of Crohn’s disease and the experiences of Crohn’s patients I have found that the discussions on the Crohn’s patient forums and message boards have been the most helpful.  The patients there discuss openly and honestly what is going on with them, how they are feeling, how this disease has affected their lives.  In reading their accounts, I noticed that four general themes arose again and again: firstly, that Crohn’s treatments are not effective at all, or if they work at first the relief doesn’t last, and in any case cause disabling side effects that are often even worse than the disease itself; secondly, that Crohn’s patients — having found no relief from conventional doctors or conventional treatment which often makes them worse — are often crippled from their illness and wish that friends and family were more understanding about how disabling Crohn’s can be and that it’s not just a “poop problem” but a systemic, chronic, incurable inflammatory autoimmune disease that often manifests outside the gut as well; thirdly, that even on their best days, Crohn’s patients still feel significantly ill and negative test results do not always correlate with decreased symptoms or decreased pain or increased ability; and lastly, and perhaps unsurprisingly considering the first 3, that there is a high depression and suicide rate among Crohn’s patients.

Please watch the following Crohn’s origin stories and see if it doesn’t make perfect sense that Crohn’s patients would tend to talk about the topics above again and again and again and again and again.  And all this suffering, every bit of it, is due to iatrogenic illness and injuries resulting from Big Pharma voodoo and medical interventions themselves, including medical mistakes; the utter failure of the capitalistic patriarchal medical machine to relieve their suffering one bit; and cannabis restriction and prohibition, where the only substance on Earth known to reliably treat either chronic pain or chronic inflammation (and this does both) is cannabis, otherwise known as marijuana.  And speaking of iatrogenic illness and injury (including so-called side effects) cannabis does it with literally zero risk of death and a relatively high risk of “euphoria” otherwise known as a feeling or state of intense excitement and happiness.

Yes, it seems that in the case of using medical cannabis to treat chronic inflammation, which it is known to do reliably and well, the most common “side effect” is to also simultaneously treat acute and chronic physical and mental pain.  Now there’s a thought.  Listen to their stories and see for yourself if you think these people deserve better.  See for yourself if you think these people deserve the option — just the option! — of trying medical cannabis to treat this horrible, horrible disease and everything that comes with it.

Continue reading “A 4/20 Post. Crohn’s Disease Origin Stories. Sponsored by Big Pharma and Cannabis Prohibition.”